Hi there. You have papilledema or swollen optic discs, which is a sign of elevated intracranial pressure and is usually bilateral. Causes include brain tumor or abscess, cerebral hemorrhage, meningitis, idiopathic intracranial hypertension or pseudotumor cerebri. Vision is usually not affected to begin with but soon blurred or double vision occurs. The accompanying dizziness, and severe headaches should be investigated and checked for multiple sclerosis also. An evoked potential testing should be undertaken. The above causes should be checked up. Take care.
Hi ktc. You would often wonder , how any of us get better with drs like this around!
I am so sorry to hear that you are being put the wringer with what ever is wrong with you, and there is something wrong, as you have already figured out yourself.
You do not get Papilledema for no reason, there must be a cause. How dare these drs just swap you back and forth , with no one really paying attention.
I would suggest, that it does sound like PTC or IIH as it is now know.Going on the fact that you have paps and all your other symptoms.
You need to have another spinal tap done I afraid as the last one could, be because of your positioning, the time of the day when they did it, and may be, incompetence of the drs part. Not every one is good at doing them, and some of the csf could have fallen on the bed,if not done correctly.
I have IIH and if I can give you some help, just ask. But please go back to the neuro. Your sight is in danger if the problem is not addressed. Ok? Cath278.