I'm a 22yr old female single mother I was recently diagnosed with syrin x on my C6 they said is small.
I have a Neurosurgeon apt may 29 dr Thomas Wilson
Symptoms are :
Headache
Head pressure
Head pain
Neck pain
Back pain
Pain in hips
Difficulty walking at times
Confusion
Loss of coordination at times
Hard to think
Dripping water out of nose
Dizziness
Vision problems
Numbness in hands, feet,arms, legs, tongue at times throughout the day
Nausea
Anxious
No energy
Trouble sleeping
No appetite
Cannot Feel when need to pee (and only peeing 1-2times a day)
Loud noises or being around too many people bother me
Sweating
Lights bother me
Ringing ears at times
Hard to concentrate -focus
Trouble talking at times
Chest numbness
Temperature hot/cold
Questions :
1.) what are my options
2.) is this fixable
3.) Any life threatening things
4.) what can I do to help myself
5.) on MRI was whole head scanned
6.) is this a disability
7.) what should I not be doing
8.) what am i allowed to do
9.) the running nose is clear should I be concerned with CSF and is it something I should be concerned about ?