Vestibular or Neurological?

[OneMoreDiamond]

I recently went to my ENT regarding some symptoms I have been experiencing that I thought might be vertigo.  I was diagnosed with visual vertigo based on my list of symptoms only, no tests were performed.  Well, I was given a hearing test that was normal.  He did mention it could be an early symptom of MS, but he would expect me to have other symptoms as well if that was the case.  I asked him what other symptoms I might have and he simply said I would have more going on than just the vertigo.

I referred myself to a local practice that specializes in neurotology and was given a battery of balances tests.  During one of the tests I heard one nurse point out to another that she saw a nystagmus.  At the conclusion of the tests, I was told I would hear from the dr about what other tests might be needed.

About 2 weeks later I received a call from a different nurse stating my tests were normal and there was no need for me to see the dr.  I don't understand how the tests can be normal if a nystagmus was seen.  I can't even get a copy of the test results, as the practice is saying they can't release them because I didn't actually see the dr.  

I'm confused here and don't know where to go next. If in fact I do have a nystagmus then there's no way the test was normal, as a nystagmus is a symptom of other conditions.  Has anyone else had any similar experiences?

[caregiver222]

My only point being was that nystagmus is fairly obvious when present, and I cannot believe, if present,it was ignored in the report. If you have a cell phone with a recording feature or a video recorder, simply record your eye movements when experiencing vertigo. You can e-mail the file to your neurologist. Good luck.

[OneMoreDiamond]

Obviously when I spoke to my regular ENT and the nurses prior to the balance testing I explained my symptoms in more detail than I did in my post.  The nurse who made the comment about the nystagmus was the nurse performing the balance testing.  I had spoken to her prior to the test and we were together for hours during the testing, so she was not a secretary nor a high school student.  She performs all the balance testing for this particular neurotologist.  

Visual vertigo is quite different than the usual vertigo that some people experience.  As far as I am aware, it does not respond to medications, as it is not a constant thing.  There are specific visual cues that trigger the response, and it is different for each patient.  I have been living with this for well over a year before I decided to get some definitive answers.  The problem is that even with seeing my regular ENT and having the testing, I still do not have the answers I need.