Im looking for any information that I can find on this diagnosis .. I was recently diagnosed myself and Im trying to find out what I have to look forward to and also want to make sure that my Doctors are giving me all the treatments available .. I also wonder what the typical life spand is for someone with this condition is as I still have young children to worry about
For more info, visit:
http://www.ihrfoundation.org/
http://www.****.com