Hi Katie. Our 18 year old daughter has SMCOHT as well. She is being treated at UCLA . There is a Doctor out of the Univ of Alabama Birmingham, Joseph Pressey who may be worth contacting. Knowing what you are going through I wish you strength and hope. Those are the things we can control. Best,
Hi Katie, I am so sorry someone so young has to deal with this ugly disease. You have a very rare form of OVCA that unfortunately occurs in younger women as yourself. My wife has a different form of OVCA than you and althought it is a rarer form but not as rare as yours. I chose to take her to Sloan Kettering also since it was a rare cancer these large cancer hospitals see these more often than a smaller hospitals because of the volume of cancer pts they see. Ask your gyn/onc if they are doing any experimental trial of medicne for this type of cancer. Johns Hopkins, MD Anderson cancer center and the Cleveland clinic are also very busy and world renown cancer hospitals as is Sloan Kettering. Call there GYN/ONC clinics to see if thet are having any trials. I wish you all the best and never give up.