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Please help!!!Several large "cysts" found on ovaries, uterus, bladder and kidney.

I've been suffering from major health issues surrounding my kidney since October. I was pregnant at the time and kept complaining of severe back pain, nausea and stomach pain. The doctor wrote it off as pregnancy issues. Come January I became severely ill and went to l&d. It was found that I had severe hydronophrosis and I had to have a nophrostomy tube put in. Long story short I was promised surgery right after I had my daughter but it didn't even come into play until April 21,2014 because my original urologist kept blaming my "enlarged uterus" cutting off my urine supply as the problem. I had continually complained of the same nagging symptoms that only seemed to become progressively worse. They finally figured out that I had a rare kidney disorder where my kidney floats. So as the months passed and my weight flew off past my original pre-pregnancy weight of 105 the doctors were not concerned at all. I kept complaining of severe stomach pain in the middle (I had a c-section with my daughter so that always seemed to be the answer) When I didn't take my pain meds which I normally take around the clock to ease the pain and my anti-nasuea meds I'm so sick I can hardly get out of bed. My health has declined a lot. A week ago I went to my doctor's and told her that my right side and the middle of my stomach hurt horribly. Also I have been having leg pain (this has been chronic also) She said it was a side effect from my pain meds wearing off. I'm very bloated but extremely thin (skin and bones) but was told that was from the constipation  from the pain meds I have been having since I had started them. Well on Friday June 13 I had an extreme side pain that was new, and had I not already had my appendix out I would have blamed that. I kept throwing up and noticed my stomach was drastically even more bloated than before. I called my friend who's a nurse and asked if she could take me to the er because I thought possibly my bowel had obstructed or something because the pain was super intense. On our way to the hospital we were in a car accident. The seatbelt crushed my stomach sending me into even more pain than I was already in. An ambulance was called and I went to the hospital. He did x-rays of my stomach and blood work and pushed pain meds. He came in and told me I was "fine" I cried, sobbed actually and told him I was not fine and that there was something seriously wrong with my stomach. He said because of all my past scans I had recently had he didn't want to do a c-t but ended up agreeing with me to give me one. He was skeptical that there was anything wrong with me. Well he came in the room and said "you were right, you have several large cysts covering your ovaries, uterus, bladder and kidney. I've had chronic blood in my urine since this whole thing started and it still hasn't cleared. This totally freaked me out because all he said was to follow up with the gyno specialist and my urologist. He did tell me that I had fluid in my abdomen but one of the cysts had ruptured so he was thinking that that's where the fluid came from. Also told me that most were the sizes of walnuts but one was the size of a golfball. I just had a scan in February and surgery in April so I'm freaking out that there's so many cysts all over. I have found nothing on people having several cysts and being as sick as I am. I'm a mother of two beautiful young (19 months and almost 5 months) I'm terrified of ovarian cancer. I meet with the doctor on Monday and I'm really worried. Has anyone else had several painful cysts, bloating, nausea and extreme weight loss and it turned out to be nothing? Please reassure me.
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Avatar universal
I am sorry for all you have been through! I had a complex ovarian cyst (ended up being a cystadenoma) 8 years ago. It did cause some pain and bloating - cannot recall if I had nausea or not. My long-time gynecologist rushed me into surgery. Even though it was most likely benign (as MOST ovarian cysts are) and ended up being so (per frozen section biopsy) he removed all my sex organs anyway. I have been suffering the many medically documented adverse effects ever since. I wish I had understood:
1) how frequently women's organs are removed for benign conditions
2) the "marketing" tactics and "consent" forms used to get consent for organ removal
3) the LIFELONG functions of the uterus, ovaries, and tubes - They have functions far beyond reproduction including anatomical, skeletal, sexual, hormonal/endocrine.

If there is a possibility of cancer (MOST ovarian cysts are benign) then please seek out an oncologist and make sure you understand the recommended treatment and its repercussions.

If you have a surgeon with good cystectomy skills, you should not need to lose the ovary (or any other organs) for an ovarian cyst IF it is indeed benign.

Have you met with your doctor and what have you learned? I hope this is nothing serious!
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667078 tn?1316000935
I know it is all scary. I have been through a lot of scary stuff. What I have learned is to take it one step at a time. I also try to stop myself from worrying.

What is important is to like the doctors you are working with and get second opinions if you want. I have had doctors who did not care I got rid of them even in the middle of treatment.

It takes awhile many times to get a diagnosis. It took me over 5 years. going to a lot of doctors. They blamed my illness on MS.

I am the worst case scenario, stage 4 Cancer. I have out lived my prognosis. I live a normal life. I go for treatment once a week the rest of the week is mine. I just got a puppy. She takes up my time. I intend to see her grow up and train her to be a Service Dog.

I have to severe medical conditions. What I have learned it to let the doctors do the worrying. Worrying only hurts me. Resentment over them not finding it early or the crumby care I have gotten only hurts me. The doctors are not losing sleep. My primary care doctor felt terrible she did not figure out the Cancer sooner. She has been a good support person. I realize doctors are human.

Our medical system make sit hard you have to get to the right specialist and they have to diagnose the right thing.

I know a lot about fear. Sometimes I can scare myself out of my whits looking at my medical. I have Cancer all over but I got in a clinical trial and it is shrinking. I have learned each case is individual. People are not statistics.

hopefully it won't be Ovarian Cancer. If it is it is treatable.

Alex



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