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small cell carcinoma ovarian cancer

My daughter was diagnosed 1C small cell carcinoma ovarian March 2014.  Does anyone have any info they can share. It's almost impossible to find any information about this cancer.
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667078 tn?1316000935
My cancer was diagnosed  in 2012. I have a garden and am training a Service Dog she is only 6 months old. I was terrified when I was diagnosed I have something called clear cell cancer which is fast growing. Make sure someone goes with her to the Oncologist. I went alone and that was a big mistake. If you do not like the oncologist you have time for a second opinion. I rushed into surgery. My oncologist was not there the day of surgery or after. After three months I changed hospitals and doctors because the doctor was a no show. I ended up in a better hospital. Now my Doctors are there for me. You have to have a team you like because you are going to spend a lot of time with them. I would not have gotten my clinical trial if it were not for changing hospitals. Unfortunately with Clinical trials only half the participants get the study drug. I think I am getting the study drug because of my come back. I had Cancer in my liver, spleen, diaphragm, four places on my bowel, and in my lymph system. It was also in both ovaries, fallopian tubes, uterus, and omentum (lining of organs) but they took all that. Now it is undetectable with the CT Scan. I also have Primary Progressive Multiple Sclerosis which I got at age two so I am no stranger to doctors and hospitals.

I am happy. My husband and I take trips. We appreciate each other more. My friends rotate taking me for weekly treatments.I was really angry at first mostly because I was sick for two years and my doctors missed the cancer. I also had to grieve. The surgery was not as bad as I thought. They had good pain medication.You just have to take it one step at a time. It is not easy but it gets better. It is totally not fair. It is actually harder for loved ones. It was harder on my husband watching me helplessly, wanting to fix it than it was for me. The body is an amazing thing it can get through a lot. Also they have good drugs to stop vomiting. My new hospitals motto is you should never vomit during chemo. I picture losing my hair and vomiting. I shaved my head before my hair fell out. It gave me some control. So did my husband. My hair grew back thick in curly. My new chemo does not make you lose your hair. Losing control was my biggest fear besides pain and vomiting. I go to a pain clinic they promised I would never be in pain if they could help it. That is why I say you have to have good team of doctors and nurses.

Fear is a funny thing is has a life of its own. The trick I have learned is to do things even when I am scared. I have MS and double vision and I used to climb three storey ladders for a living. I learned to take it one step at a time and not think about what I was doing. I have been scared to death by the Cancer but again I take it one step at a time. Distarction helps. Also things to look forward to. I had a huge 50th Birthday Party where over 70 friends came. For 51 I rode an Islandic Horse something I always wanted to do. I have ridden in a hot air balloon. A biplane is next on the list.

I was scared of IVs but they put a port my chest they day after surgery. They do all IVs from there and it is so much better. You can do anything with a port. I ride horses and swim in the ocean. I have done both since my diagnosis. The main thing is life does not have to end because of Cancer.  I am optimistic they are coming up with new treatments all the time. I think they will keep me going for years to come.

I am here for you if I can help at all.

Alex


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Avatar universal
Thank you for your comments.  My daughter has just been diagnosed based on an ovarian biopsy. She is only 36. Her doctor is sending her to an oncologist next week.  We are all so frightened by this diagnosis.  Your words are very encouraging.  When was your cancer diagnosed?
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667078 tn?1316000935
All I know is it is a tough Cancer that strikes younger women. It is good they caught it at stage 1c. The main thing is to research the hospitals in your area and get her to the best for Small Cell Carcinoma. I have a rare form of Ovarian Cancer as well and am doing very well. I was satge 4 when they diagnosed me and I had Cancer in 15 places. My last CT Scan shows it shrunk down so it is barely seen. I got on line and what I read was grim. I have learned since then two things people are not statistics and the research is not up to date. You might have some luck with the Ovarian Cancer National Alliance Support Community finding others with her Cancer. I had the full surgery and the six chemos of Taxotere / Carboplatin which was not fun. For over a year I have been in a Clinical Trial with Doxil and it has been okay. Most people do not even know I have Cancer because I am not sick. I have passed my life expectancy and expect to go for many years. I have good doctors and nurses and the latest medicine.

Alex
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