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ANY HOPE FOR CRPS ??

Hello everyone,
For the last 9 years I live with CRPS (CHRONIC PAIN SYNDROME). I take many medications - but it's destroying my life.

I feel hopeful that i can find someone to help me.
can anyone help with a new treatment?
5 Responses
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20803600 tn?1546262537
COMMUNITY LEADER
As someone who had CRPS and lived with it for years, there is hope..regional blocks, stimulation of the nerves effected, but the best option is the most painful and that is physical therapy, using the affected limb, and determination to keep at it.
There are specialists who treat CRPS, and offer far more options than traditional meds which really become ineffective over time.
I developed it after a shoulder reconstruction and at first it was just the shoulder joint area, then it spread down my arm, across my collar bone, upper arm, forearm, hand, and finally fingers. I lost the use of the limb, atrophy, muscle wasting, contractures, hot and cold cycles, constant burning, air blowing across my skin made me writhe in pain,couldn't wear anything with sleeves..after almost 8 years, I opted to try to bend a finger tip just a bit, eventually working up to larger areas, after a few more years, I woke one day and realized the burning, extreme sensitivity, hot and cold, excruciating pain was greatly reduced..since then I get an occasional ache, but no more than anyone else. I regained use of all the limb, but not without some really painful time and persistence.
Helpful - 1
2 Comments
Thank you for sharing . So yes, there is HOPE(:
Yes, there is. I think the most important thing is that you don't give up. Don't push too hard, but be persistent. And check major hospitals for specialists who treat CRPS. They can make a HUGE difference in managing the pain and doing the right blocks, to help.
Avatar universal
I went to pain pump you never really get rid of all your pain u have to figure out how much pain can u live with and adjust your life style, it stinks I know. My pump took about 6 to 8 months to adjust but i have enough relief to do min activity. But u have to keep moving dont give up. Even if u cry from pain keep doing something. GOD BLESS
Helpful - 1
20803600 tn?1546262537
COMMUNITY LEADER
We have to develop work arounds and learn to cope. Eventually we do, and learn to manage as best we can.
I still get issues flaring especially in cold air, but it far better than it was.
Helpful - 0
Avatar universal
I’ve had this for about 12 years.  It’s localized to my right foot.  It eventually changed color, grew extra hair, and the skin got shiny.  I am unable to take anything for pain, so I’ve had to find other ways to manage.  For me, I mostly use distractions.  It’s still a problem area, but for the most part-it has become like constant, loud background noise.  Maybe some of the nerves finally died, I don’t really know...  It still makes sleep difficult.  I’ve got some work arounds though.  For instance, I absolutely can’t tolerate air blowing on my foot-the pain drives me crazy-so I’m in soft socks all the time.  
Helpful - 0
Avatar universal
I agree with the movement I stopped moving so I didnt have to take so many pain pills, then My doctor suggested the pain pump I have really bad spine failed surgeries. I got the pump and it was real hard to get used too at first. But I had more energy and not so hopeless feeling taking all those drugs. I still need nerve pain  meds but they dont make you feel loaded. Then I started gardening it hurt so bad but I prayed and kept at it. It gave me something to take care of and gave me excercise. I have a long way to go but moving is the best thing you can do no matter how much it hurts at first.
Helpful - 0
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317787 tn?1473358451
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