Hello.
In about 2007 I was diagnosed with vulvodynia (chronic vulvar pain). After all the typical treatments amtriptoline, neurontin, gabapentin, physical therapy, muscle relaxants, topical creams, etc., my doctor finally to do last resort treatment of vestibulectomy. First surgery went okay but didnt help, so another doctor tried again. After the second surgery, I woke up with burning inner thigh pain. That was in 2010 and no one has been able to help with either condition.
My focus now is the chronic inner thigh pain. Fast forward to now, these are the things doctors have tried:
MRIs:
Lumbar spine wo contrast: not remarkable
Pelvis wo contrast: right pudendal neuralgia, mild edema across bilateral sacroiliac joint, mild degenerative arthritis of pubic symphasis
Cervical Spine: degenerative disc disease at t2
Brain: unremarkable
I've had several nerve blocks, none of which helped.
Pudendal nerve block
Obturator nerve block
Causal epidural block
Iliolingual block
Genitofemoral nerve block
Hydroplastic plexus block
Sacroiliac joint block
Ganglion imparts block
Differential spinal block
Medications include:
Desipramine
Gabapentin
Amatriptoline
Minocycline
Lyrica
Cymbalta
I've had nerve conduction studies, blood work, I've been tested for lyme disease, autoimmune disease
I've also tried accupuncture, massage therepy, chiropractor, physical therepy, yoga
Does anyone have any idea what my doctors could be missing? What is causing this pain. I've lived with the thigh pain for 8 years and the vulvodynia for three more than that! Let me know your thoughts. I may have missed something I've tried so I'll look through my records if you have questions. I'm running out of doctors I can go to.