As a newlywed with declining health, I need as much help as I can get. I have numerous chronic intractable pain conditions, including: RSD/CRPS, Sphincter of Oddi Dysfunction/Papilary Stenosis, Endometriosis, Interstitial Cystitis, Chronic Migraine, and others. My PCP has an absolute policy against prescribing any scheduled medication of any kind. He and numerous specialists I've seen in KY, all state that I "Need to be on pain medication." I have been in and out of the hospital over the past year, and the same sentiment was repeated, however none of the doctors who say this will actually write me the medication. I have become so frustrated with KY pain care that I have learned the law and all about my conditions to such an extent that I find most doctors I encounter don't know my conditions as well as I, and as for the pain medicine laws...I know they must protect against abuse and diversion, it has become nearly impossible for legitimate patients to get help.
I have become an Ambassador for the US Pain Foundation, and Delegate to the Power of Pain Association. I fight daily for patients' rights, but ironically, I cannot get help myself. I have had multiple blocks and injections, which only made the situation worse. I use water and massage therapies, TENS unit, meditation, and any and all supplemental therapies I can. However, I am not Ghandi. Without the help of Pain medication, I fear that my life will continue to deteriorate, leaving me basically bedridden, and although my husband is extremely supportive and understanding, this is not what I envisioned for myself or him, at only 39. I know that with good reason, people are apprehensive to share their doctor's information, but I am truly begging for anyone with a kind heart to at least steer me in the right direction. I will gladly provide any details which make you more assured in my trustworthiness. A young couple/bright woman is deteriorating, and truly losing hope. Thank you in advance for any information or guidance you can provide.