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Avatar universal

I really need help and I hope you fellow pain sufferers can help

I live in southern ohio and I am at a pain management doc that ignores me when I tell him the medication is not working anymore and I am suffering for it horribly. To be honest I haven't had the best past with pain management  that being said I expected to pay for the few mistakes I have made and do believe I am paid in full. I do also understand the DEA's witchhunt for PM doctors has something to do with it too leaving most of them scared to do thier job correctly. I will start with a little background and I am going to be completely honest anjd I hope you all will respect that and not judge me too harshly. I grew up and lived in Georgia, until 3 years ago I worked as a floor installer and had been doing that job for almost 20 years so since  I was a teenager and I was never fond of going to the doctor and really did not go unless I had to get stitches or had fractured bone anything else I actually believed it was a sign of weakness so whenever possible I pushed through the pain and worked on this small mindedness is what has led me to the world of hurt I am in now. I have been diagnosed with osteo arthritis,necrosis in my knees,and bulging discs in my back in 2 different areas plus I have a natural deformation in my feet where I have bone spurs on the insides of both my feet below my ankles 3 inches which I have had all my life but over the years they have gotten bigger to the point where they are actually hanging out past my ankles by an inch, I was not used to being in P.m like I said so a year after startingat p.m I screwed up and smoked some wee during a stressfull time but no excuses I shouldn't have done it but I did and when I tested positive my doc which by the way was the best one I have had here fired mre ofcourse  so then I was sent to a diff. PM doc and this guy was a straight *** cause he knew I had been released from another pm and dropped me from 90 oxycodone 30's amonth and and 90 morphine 100's to percocet 5mg and morphine 20 mg . This so called doc told me my conbdition's dont hurt and refused to look at all my mri's and only focused on warning me not to smoke weed again or he would call the DEA on me and tell me how he is not going to ever prescribe me oxycodone ever his exact words of he was prescribing me oxycodone 5 mg cause thats what the generic percocet 5 's are called I am not a drug abuser and never have been never been jailed for such things etc.and the 15 or 16 mo with the 1st doc only tested dirty once out of all those times of 1 a month. This doc was playing judge and jury with me and made me suffer those low doses for almopst 6 months this is not right or even ethical if you ask me we are all human and our going to screw up to make someone physically suffer is outragous to me anyway i made it there for over a year always testing fine but was miserable to the  point of doing something diff cause this guy was never going to do his job and help he never sent me for another mri and never tried anything over writing a script but by this point he had conceded that I needed the oc 30' and allowed me 60 morphine a mo. but he was stil under treating me and a friend told me about suboxone and saide they would prob help and I could fire the jerk and go to an open clinic  anyway I tried made me sick and even though I only tried it once it was enough to show up and the doc jumped at his chance to fire me  so here I am 3 rd doc off 2 bad choices and this guy says he can only help with my back and not the rest but he is a pm I am sure I am getting punished again by another doc and I did it to myself with stupidity but I felt like I had no option after the first doc my pain became un believable to the docs even though I was honest about why i got the boot when asked I am to the point of i have NO QUALITY OF LIFE ANYMORE and have thought repeatedly of going somewhere putting a gun in my mouth and pulling the trigger its that bad I have 4 children and this is the only reason I haven't so I am desperate here I  run short on my meds due to taking more than 2 a day but when the pain starts I will do anything to stop it I have never been locked up for drugs or even had issues with them except for a few stupid moments  southern ohio happens to be going through a drug crisis though so I have to suffer doctors justice can anyone tell me what I can do I am an honest law abiding citizen except for the few indiscretions I shared with you guys and the pain has become unbearable  my wife as even tried to advocate for me nwith my new doc and he wouldnt even listen to her at all and she  has never broke a law at all I can't keep serving this punishment this time it is to severe My family is watching me suffer and its not fair for them either I desperatly need help in southern ohio the ortho docs say I need both knees replaced and pediatrist say I need bone spurs ground down and tendon taken out and replaced cause its stretched over the spurs you can see them through my shoes  but the ortho doc said he wont do surg till i am older  cause im too young and it can only be redone once more after 1st time and PED says surgery will leave me in cast well over a year my wifes only income coming in I have 2 special needs kids out of the 4 which are in the autism spectrum and we cant afford babysitters so I have to keep going but barely making it for them
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Avatar universal
I do appreciate all of your comments and suggestions I have called my PM doc and aam going to meet with him and hopefully this will help. I have been filled out for disability for 2 and a half years now still nothing. I hate to getr any government assistance but over the years I have seen plenty on it that didn't even need it here I am legitimately hurt and can't get it its crazy how messed up our system is. God bless all  of you for your understanding and compassion that you have for a stranger and I hope your loads get lighter and pain gets better. I will find out if the doctors is going to help or not next monday and I will keep you guys infomed. Thanks
Helpful - 0
1331804 tn?1336867358
I agree with the others.  I think you really need to start the disability process.  It can take up to two years to get approved but it can definitely take a load off of your shoulders once it is approved.

My only son is on the autism spectrum as well and I am sole provider for my family.  So, I totally understand what you mean about care of special needs children particularly those with Autism.  Fentanyl Transdermal allows me to continue to work full time while my husband stays at home and watches our son.  Granted I am able to work from home during pain flares and go out on intermittent disability when it is really bad.  

Whatever you do, DO NOT give up HOPE!  Your family loves and needs you!  

I am one of those that is not against marijuana at all.  I live in Colorado and have a MMJ license and I have used MMJ in the past and it truly helped my pain so I know that it does have medicinal properties; however, I know MMJ is illegal in Ohio.  

Methadone is a very powerful pain killer.  There are some dangerous drawbacks that you have to watch out for such as QT interval prolongation.  The key is to not take more than you truly need.  You could go to a methadone clinic to get the medication; however, it could black ball you from legitamate pain management BUT if you are at the end of your rope and have went to all of the pain management facilities in your area and no one will treat you, this is an option that you could consider.  Suboxone is VERY expensive...methadone is VERY cheap.  So an option to consider there.

Please keep us updated on how you are doing and please come back.  We are here for support!  I understand how you feel and know that you need to accomplish everyday responsibilities that are non negotiable.  

Hang in there!!

femmy
Helpful - 0
250051 tn?1328131130
I understand where you are coming from, I need a hip replacement but the ortho doc says that I'm too young, I need foot surgery but the ped doc says he don't want to do surgery because I have congestive heart failure. I feel like I'm in a lose - lose situation and that is what your situation sound like to me. I went to a pain management doc and he prescribed me vikaden (spelling? lol) 10/500 1 every four hours. Changed PM docs to another doc who actually listened to my problems and examined me. I was prescribed Butrans Patch, he started me at 10mcg since I was already on short acting pain meds but said we could go up to 20mcg and you wear this patch for 7 days and after day 1 I felt relief I am now on day 6 and I am really looking forward to walking without a walker and not having to ride in a wheel chair when I shop. I hope this was of some help :/ feel free to chat with me if you  need to, that is why we are here...for support :)

Yolanda
Helpful - 0
2030686 tn?1351688548
Have you talked to your other dr's about treating your pain.  My urologist prescribes my pain meds for Interstitial Cystitis, but she knows I take it for other pain as well.  They might have a better idea of what might work for your specific conditions.  You would have to make sure you're only getting pain meds from one dr, or make absolutely sure that they know what other pain meds you are on.  My urologist prescribes my pain killer, but my regular dr has no problem giving me a NSAID.

I understand pain and it sounds like you are in more pain than I am but there's one thing you have to remember.  The pain will always get worse at one point or another (like after surgery).   If you're on the strongest pain meds, what are you gonna take when it gets worse.  I am at a point where I need to go to the next step but I'm afraid of where to go when it gets worse.
One thing I do is I switch back and forth between two pain meds each month and it helps bring my tolerance back down a bit and they work again.

For back and knee pain an anti-inflammatory like tramadol(can't remember brand name) works really well on top of pain killers.  I've also discovered Lidoderm patches and they have helped tremendously with back and knee pain.

Have you considered applying fer SS disability?  If you have a psychiatric disorder (I think clinical depression counts) and  physical problems you have a better chance of qualifying.  You may also be able to get your special needs children on disability.  
Helpful - 0
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