Remar, thank you so much, I'm sorry I didn't see this til now. Yes, people comment or they can say this is a bad idea etc. I am happy to see that several have commented since yesterday. It is a real nightmare. I met a woman who had a fusion with a cage, the cage has slowly becoem attached to her spine, into instead of around her spine. She is an agony every day, has been cut off 90% of her meds. No one seems to understand. Veterans who fought for us have been cut off and the VA has the nerve to be proud of the torture they have caused. Others involved, are so proud of themselves, it is disgusting to me how people don't understand that pain patients didn't create this nightmare the pharmaceuticals like McKesson did, sending millions and millions of pills to drug traffickers.for years. They were fined in 2013, again last year. They continue. I watched the FBI Whistleblower then the ex Head of DEA. He said Congress knew people were dying, did nothing, just like now, they know now and are doing nothing. It's all about the money. Sorry, just so sad for everyone concerned.
Remar, I am so sorry for your loss. Every day I hear about someone who has committed suicide because they couldn't stand the pain anymore. The second link that I posted works, I just tried it. I am fast losing faith myself. This will become law if they don't get enough comments.In 2012/13 PROP tried to get pain meds banned for all but hospice and cancer patients. 2,500 people were able to stop it. Since then this group has become very powerful and their leader says no one needs pain meds; .Andrew Kolodny says that pain pills are just like heroin. It makes me very sad to think of people in intractable pain being denied relief from their pain. Now it seems the GAO is going to go after Medicare patients.
Despite proof that prescription deaths have gone down 72% and illicit fentanyl deaths have gone up 110% no one seems to be paying attention to people in chronic pain at all.
Right now only 648 comments here is the link just in case.
https://www.regulations.gov/docket?D=FDA-2017-P-5396
I agree, it's getting really bad. Chng.or is good. I too have signed anything that might help us. I've joined some groups that have spoken to Congress. There are FB pages, Twitter. I'm trying to help anyway I'm able. Thank you both for commenting. I'm very worried for our future.
I don't know why they don't leave us real chronic pain sufferers alone.
Don't any of these people who are making these suggestions, rules, and laws suffer from chronic pain?
We're loosing people every single day because they're being under medicated, or they've been released from pain clinics. They just can't have any kind of life without the help of pain medication.
There's a site where I sign every petition I can that might help us chronic pain sufferers. It's change.org. I hope I'm allowed to put that on here.
I'll check out this site.
FNTN, you're so right, it's getting hard to keep up with all of these new regulations. And they do need to leave us alone. Many of us were doing just fine with our family Drs. Now we're being forced in to pain clinics, forced to take urine tests, many times our medications are cut back.
We have to stand together and fight for what we need.
Thankyou Dee!
Keeping up with all of our various restrictions is difficult these days. We are being assaulted from every side. But we still need proper pain management which isn't even being discussed.
Just sit around, but all the otherside offers is for us to hope that pain leaves us alone .... no other real solutions. sad.
I tried, here is is again www.regulations.gov/docket?D=FDA-2017-P-5396