Long story - shortest version I can make: I’m a long term chronic pain-er from endometriosis, pelvic pain, adhesions, etc. I’ve been taking OxyContin 80mgs 3x daily plus 30mgs oxycodone 4x daily (or as needed) for well over a decade. My insurance is insisting I do a one month trial of the Xtampza which I start today. My pain was well managed on my old meds but the insurance won’t cover them any longer unless I at least try The Xtampza for the month. My doctor is a family MD but she takes on a few trusted well vetted chronic pain patients since we live in a small rural area with the closest pain management clinic at least an hour’s drive away. I’ve looked at the dose conversions and to get the equivalent amount of medicine I should be getting 2 36mgs of Xtampza capsules 3x daily (180 capsules a month). She’s prescribed only 2 doses a day (120 capsules a month). I’ve been communicating with her through this change via her nurse/assistant, leaving messages, getting calls back, etc which hasn’t been very effective so I have made an appointment to see her face to face on Friday to discuss.
I’m worried about the decrease in dose and how it will affect my pain levels. Should I be? It seems like a cut of this size (a full third of my old dose) is a lot. She’s always been fine with prescribing my meds, I sign a pain management contract every year and am compliant with the conditions in it.
The last call back from her assistant is the first time I realized that she actually wants to CUT my dose downward. I called her office because my pharmacy initially got the prescription from her with only 60 pills/month and I knew that wasn’t right. I know she hasn’t prescribed this medicine before for any other patients so I just figured she made a mistake in converting to the equivalent dose. She then upped it to 120 pills/month so I called again and when I talked to her assistant I got a basic “take the 120 pills OR give up the 30mg oxycodone breakthrough pain meds and she’ll give you the full 180 pills”. Either that or we’ll refer you to the closest pain management clinic. I was gobsmacked! I said I’ll take the 120 pills and keep my breakthrough pain med - which I need. I’m feeling a little “Deal or No Dealed” at this point. I made the first available appointment I could get with her and I guess by then I’ll know if the new med - Xtampza - at the lower dose is going to work. We’ve never discussed a lower dose situation in the 10 years + that I’ve been seeing her and I know she trusts me so I’m wondering if something got lost in translation between the assistant (someone new whom I haven’t met yet), me & my dr.
Complicating factor: I also take Xanax (1 nightly) for insomnia & the insurance folks say that they won’t cover the Xtampza unless I discontinue the Xanax (no benzodiazepines with Xtampza). Dr. switched me from Xanax to Trazadone (which is not working) so I’ll have to discuss that with her as well on Friday.
I’m probably over emotional about this because I’m not getting proper sleep but I feel like she’s about to fire me as a patient and that worries the heck out of me. What should I do? Does anyone else here have experience with transitioning from OxyContin to Xtampza?
Thanks in advance for any advice you can give me.