tired of pain want to live normal life

[phil40]

burning in lower back for ten years no drugs or therapies work what can i do

[bigsissie]

Is the burning from pain or is it in your muscles, skin or nerves?

[mkh9]

Hi Phil40,
I'm so sorry you have been suffering from back pain for so long. Burning pain sometimes is nerve related. Tell us more detail about what you pain came from (was it an injury?), have you seen an orthopedic surgeon, and neurologist? Have you had an MRI and /or other tests? What drugs have you tried? Do you exercise?
thanks,
mkh9

[phil40]

had mri s seen orthopedics neurologists every thing. discograph showed a leak in disc l1 or l2 cant remember which. tramadrol was my last prescribed drug but not effective on burning in buttocks

[jh310]

mostly i was wondering Phil do you know what is causing that burning in buttocks because i have that too last 3 or 4 months and it drives me crazy. :( It doesn't respond to the 10/325 norco i use for the lower back pain. i told the doctor but he didn't really respond. how do you deal with that pain since meds just don't work on it.
thanks, jan.

[cresidoen]

Has anyone taken Kratom?  I have tried it and so have a few friends with serous pain.  It really works and nothing has helped my husband 3 blown disc but this.  We happen to have a friend who has been making an liquid resin extract of it for several years and the relief I get from the pain in my thumbs is wonderful.  It even gives you extra energy and seems to relax my attitude.  If anyone would like more info research it and I will be glad to further explain what my friend has available.  cresidoencasa at the yahoo place.

[Jac074]

Hi Phil40,

Sorry to hear of your pain - I can truly empathise, I've suffered debilitating chronic burning pain in the bottom half of my body for around 15 years. By describing the pain as "burning", it sounds like it could be neuropathic pain - have any of your Dr's confirmed this for you? Does exercise make it better or worse? Neuropathic pain is hard to treat but there ARE ways to get better. It could even be a neuropathic pain condition known as RSDS or CRPS.
IF it is neuropathic pain, then you may want to consider having a Ketamine infusion - I was literally suicidal with my steadily worsening pain and was urgently admitted to hospital 3 weeks ago for this treatment. And for the first time since I was 20, I have GOT MY LIFE BACK. :-))  The pain is not totally gone, but it's now completely manageable.
Have a look into this, talk to your doctors, look around sites like this one. As with everything, there are risks, but you may just find the breakthrough you need.
Please note, this treatment only works for neuropathic pain as far as I'm aware - but please talk to a doctor about it and see what they think.  Very best of luck to you.

Jacqui :-)

[Sumanadevii]

I have MS.  While unusual, I only presented with lower back pain.  It began 27 years ago after the birth of my last baby.  Eventually I was unable to walk any distance without a wheelchair.  Now, having said that, "silly" things that I blew off as not anything of importance now glare out as signs of MS.  I had leg cramping that would wake me from my sleep, fatigue, burning feet, burning thigh, taken by ambulance twice over the years for heat related illness (MSers can't handle heat), tingling in my fingers and toes...but the back pain was so bad I could only feet that pain.

I have only one tiny lesion on my brain.  My spine and brain stem carry the disease.  To be dx you need a good neuro.  My other suggestion is to be sure to have your MRI of your spine run on a 3t MRI...My first idiot neuro took it on a 1.5MRI and that resolution missed it.  It was not high enough powered.

I do remember over the years writing on a message board about bad backs (about five years before dx) that I felt like an 80 year old and I was in my early fifties..  

I hope you get some answers.  I remember telling my internist when she said it was a "little" arthritis that it wasn't a little of anything.  I knew something was very wrong.