I am not clear on your question: does she have a vascular ring or not? If she has pre-existing tracheal narrowings due to her auto-immune disease, independent of a vascular ring, perhaps they feel that the narrowing caused by a ring is not significant and that repair would be unlikely to change her airway status. You said they said the MRI was OK....so not sure if the ring was a correct diagnosis or not. Fainting would not likely be associated with a vascular ring. That usually has other causes such as inadequate fluid intake and low blood pressure.
Yes, she does have a vascular ring. They have said everything you are saying which is somewhat relieving coming from an outsider. Last week she had another dialation on her trachea, while they were in there, they also did a broncoscopy. They did see the Ring pulsating on the trachea. We see another Cardiologist next Wednesday. I will not know if they will be doing surgery until next week. My concern is that my daughter has an Auto-Immune disease, 1 in a million children get this. I am scared and not confident that this ring could kill her. I don't want my child to be another statistic. I thank you for your time and expertise. I do feel a little better hearing about the same thing from you.