Looking for parents of kids with congenital hypothyyroidism

[jdj3]

My 13 month old has been on levothyroxine since day 4 of life. She was born without a thyroid. Now they want to test her for growth hormone deficiency because she is growing very slow and tested low on an igf1 test. She is on track in every other way but is just very small and hadnt grown at all between her 9 and 12 month check up. Can anyone relate

[jdj3]

Ok thanks Ive never done this before so Im not sure what Im doing...

[margypops]

I think your question would do better if put on the thyroid forum or the Expert/Doctor forum.Good luck