I desperate need help for my 11 year old son. He is having pain in his groin area onset for about 6 years now. The pain is increasing. I took him to several physicians and nobody knows what's causing it. It all started when he was a baby, he had a little mass in his inguinal area and I took him to a urologist he said was nothing and would disappear. It never disappeared. I kept seeing the mass and he started to have pain in his inguinal area, near the femoral area. The little mass kept disappearing and appearing. I had to make videos so drs. would believe me. When he was 6 years old he did orchiopexy surgery then 2017 pediatric surgery did laparoscopic surgery and found a right inguinal hernia . However, this hernia was never detected in ultrasounds, MRI's or CT's scans. After his surgery the pain got worse. Since 2017 he is having this pain on and off. Now, 2021 the pain is extreme and frequent it's daily at a level 9. He describes the pain likes pins and needles.
He is having the pain in bilateral - groining area- femoral area as well. His belly gets swollen and his veins gets dilated. He doesn't have pain any elsewhere. I already took him back pediatric surgery and he recommended to take to pain management doctor and I am intrigued because no physician in my area knows what is causing the pain. I'm running out of options at this point he's been to countless different doctors and over the counter pain meds aren't helping anymore. I'm desperate for help I can't stand watching him suffer everyday. I'm researching and looking for answers. If anyone has any tips, please let me know.
He already did all kinds of tests: urology, immunology, blood test, vascular, CT scan, ultrasound, MRI
Thank you for your kindness and help!