aplasia cutis

[chichirichi]

My son was born with aplasia cutis. He has a small coin sized bald patch on the head. He is almost 4, is a great kid, happy, smart , terrible handsome and very sociable. Recently he asked me what is this thing he feels on his head when touching it. It doesn't seems to hurt him or bothering him. I was wondering just in case we ever consider surgery to remove the spot -  is there anybody who did surgery for their baby , what do you suggest: to do it at this early age or just to wait for him to decide. What are the possible side effects if doing surgery now, what do we expect ? thank for any suggestion.

[Emilylynn333]

Sorry didn’t mean to post my comment lol. But anyways, after we got his stitches removed, the area looks almost the same now. There’s little hair growing inside it, way less than it looked like when he had stitches. We went back 3 weeks after the stitches were removed and the surgeon said that she saw hair follicles but to come back in 3 months. She said later down the road he could have scar removal (not sure what that is?). We are hoping and praying that he will not need any more anesthesia or surgery. They gave him anesthesia for the surgery and when taking his stitches out. I also did some research and found that some people said that after they got their stitches out on their scalp that the hair went dormant for a little bit and eventually grew back. They said to wait 4-6 months. I will post an update when we go back in May.

[Emilylynn333]

My son was born with ACC. The area was about a little bigger than a quarter. It had one bigger lump along with 2 smaller ones next to it. We decided to do surgery at 3 1/2. They reccomend surgery 3+ because the anesthesia can effect their development (I guess?). The surgery didn’t involve tissue expanders. They cut the area out and sew the skin back together. after surgery, the area looked great. It looked like the scar would just be a small thin line. The hair was growing awesome. However, we went back a month after to get the stitches removed

[niloufar972]

Hi my son has the same problem we removed the bumpy spot when he was 11 months old,now he has a long almost 2 inches by 1/2" bald spot on hid head and I think getting larger as he grow,I am searching with any possibility for him I really do not leave him with this bald spot on his crown,please please share with me if you found any solution for your son I will not loose my hope and continue research,my email is ***@**** thank you very much and hope god help our sons:)

[MartyMcflyinoz]

Our son had surgery for aplasia cutis at age 8.This was because he was getting sunburnt on his "bald spot".It basically involved cutting a flap of skin below and folding it over and stapling it.He is now left with a lenthy scar,as he is approaching his teenage years and is more aware of his appearance we are looking at things like a hair transplant.I remember this being a scary experience when I first saw the ulcer like spot as he was being born.I will post if/when we get the next stage completed for him.The other option may be a ponytail but were they ever fashionable for a teenage boy?lol

[AnnieBrooke]

My doc told me that in order for the bald spot to be removed on my head (I don't know the name of it, but I'll bet it's the same thing ... it's just basically a place where hair won't grow and is about the size of a quarter) I would need to wear a balloon under the skin to stretch the skin first, for about six to eight weeks, and then they could excise the round patch without putting too much pressure on the surrounding skin.  If it isn't done that way, he said, the skin with the scar will have a lot of pressure on it and the hair will open at the spot, so instead of having a round bald patch, I would have a long visible scar of stretched skin with stitches marks on either side, like a zipper, more visible than the round patch I have now.

This was the only time I ever spoke to a dermatologist about it.  Maybe things have gotten more modern and the excision doesn't need to be handled that way any more.  You could certainly ask a dermatologist.  It's not that big a deal to live with, though.