Joevanie, I tried the oxy powder and the sach boulardii, but it didn't reduce my symptoms at all. However, some of the members of the forum have had reduced reactions by changing their diet and taking those three supplements.
"FWIW my PATM is on the morgellons/parasite side of the spectrum, with no body or breath odors involved."
That's the thing, most of us are classifying it as PATM, but we may not all have the thing. My PATM comes mostly from my breath and nose. There are also sufferers who also have a combination with TMAU. I also notice that people with weaker immune systems have worse reactions to me.
Unless somebody knows of prior statement, I think Ginger Savely, DNP, should be credited with the first public recognition of the PATM condition from a medical professional. At the 2014 CEHF Morgellons conference, she stated that she and others in her office often experience itchiness around Morgellons patients. She is a hero and a genius. Those concerned about contagiousness should consider that she has treated over 500 morgies, and attends a yearly conference with rooms full of morgies, yet hasn't acquired the condition.
Re: "Doctors can solve our problem, not random people taking goat dewormers."
Have you or anybody else here had any degree of success speaking with doctors about this problem? I haven't, though my doctors do not discount my Morgellons as DOP, and they are among the people most affected by my PATM. However, an ayuravedic practitioner and a substance abuse counselor could admit to the strong PATM phenomenon and discuss the change in severity with me over multiple appointments. Are you hoping doctors will treat you for a condition that they won't admit is real?
Veterinary dewormers were the most important part of my healing. I have gone from PATM that affected 95% of people within a 5 meter radius of me, to noticing the phenomenon a few times per week. My outlook has also changed. I feel organisms in others are at least partially responsible for each occurrence - people make me itch, I don't just make them itch.
FWIW my PATM is on the morgellons/parasite side of the spectrum, with no body or breath odors involved.
“Update: I already got all my dental work done. I got x-rays, got my wisdom teeth removed, got one filling and also got my teeth cleaned. It's safe to assume that PATM is not a mouth problem.”
Great effort but since you had it for only a few years, you can scroll through the forum and check the many things that people have done in past years, so you won’t have to expose yourself again to harmful x-rays etc. Members have done things including dental checking, mouth, sinus, throat etc. and have cleared it all.
“I went to another physician to get a blood test to see how my kidneys and liver are functioning (among many other things). The only things that were slightly abnormal were my Albumin and Creatinine levels.”
Check out links in past year posts from members who actually did thorough test and posted the results online for everyone to see. Many have done tests of all kinds before. That won’t do it because they’re checking for a list of limited compounds such as hormones and proteins that may indicate a known medical condition. We don’t have a known condition. We don’t know what we have so we & doctors don’t know what to look for just yet. What we need to do is to go deeper. We need a GCMS screening that would allow compound-by-compound analysis in comparison to other healthy individuals. We need all the results including the chromatograph themselves. That’s the easiest way and probably the only way, we can pinpoint what is PATM specifically and the causes. I’m trying to do the same thing but I want to be there when the tests are done as I know how biochemists and lab technicians can be arrogant to do things the way they believe it should be done. For example, GCMS machines are not all the same, some are better at picking out details (gaps are wider between peaks) than others. They may just choose one that has fewer gaps because it’s faster. Compounds are delayed less time as it traverses through the tubes into the detector. While it’s fast, it harder to analyze as peaks have a greater tendency to almost overlap or less defined.
“In a couple weeks I will see a gastroenterologist.”
Again, check out the posts of many people who’s been to a such specialists. They might provide you with valuable information.
“I did call you out because you're assuming that I'm a troll, or a scammer without any proof. I have already had private conversations with several members of the forum and I have never asked for sympathy, or money in return.”
I thought that was done. Get over it will you. You didn’t know my thoughts until I told you. That’s why you responded to me with a private message after I told you in the forum that I’d give you money. You honestly thought I’d provide you money but you weren’t sure just yet so that’s the purpose of the message. The private message was also to avoid the risk of humiliation. You didn’t want other forum members to see, in case some would label you as greedy. It was only then I told you the truth, apologised and encouraged you to continue on with your plan. If an apology and encouragement is not enough for you, what else do you need? What would it take for me to make your heart feel better?
“Also, I never got my hopes up because with my luck, I doubt someone would actually do something that unselfish.”
I know you had high hopes but also some doubts otherwise you wouldn’t have private message me at all. It’s typical of most innocent people.
Everyone is out for themselves instead of trying to help each other out.”
Actually, we are helping each other out right now; it’s a mutual relationship. What happened between us is just a misunderstanding.
But if you want to know the truth about how the world really works, and not the fictitious social engineering that’s done to humans since birth, here is the honest truth, everyone is really selfish down to its core. Read the selfish gene and other scholarly articles and writings of many professors on this subject or just to go to university and study it. The funny thing is, most academics don’t want to say the truth but guide students to conclude without them actually saying it. That avoids social pressure and backfire.
Humans are fooling each other thinking we’re better than animals because they’re live by the law of jungle and we don’t. In actual fact, we just have a more sophisticated of jungle laws. We only support each other because it’s a mutual relationship crucial for survival.
It’s taught socially that we really care and love one another (altruism) but biologically proven otherwise. Like all species, we actually weight and balance (both unconsciously and consciously) the importance of each individual or things in our lives, which influences our decision making. So whenever, someone tells you that we care for one another indiscriminately … just know that is socially acceptable and naturally that’s what we want to hear but actual fact, it doesn’t happen. Deep down in our biological makeup, every organism, including humans, is selfish. When we call someone selfish in our everyday lives, what we really mean is ‘too selfish’, but we all are. Social altruistic love is sugar coating expression, which is very important for our survival and mutual existence, but nevertheless, not a fact. I just wanted to share that with you so whenever you criticize humanity for not loving one another, just know we are pleased to hear such analytical sweet words, but it doesn’t happen in reality. Everyone is selfish including yourself and I. Most people only interpret what’s happening according to their limited understanding, just as people who believe in Zeus, spaghetti monster or any mythical being believe that this world order is the result of their divine love and intervention.
Nevertheless, can we forget about all that and discuss PATM? Right now I’m having a bad day from all the junk food but by tomorrow, it will all be gone.
Update: I already got all my dental work done. I got x-rays, got my wisdom teeth removed, got one filling and also got my teeth cleaned. It's safe to assume that PATM is not a mouth problem.
I went to another physician to get a blood test to see how my kidneys and liver are functioning (among many other things). The only things that were slightly abnormal were my Albumin and Creatinine levels.
Albumin result: 5.4... The average levels are 3.5 to 5.2. The physician said that this is from stress. I'm trying to get my stress under control by drinking black tea in the morning and having a positive attitude. Still my result was only slightly above normal.
Creatinine result: .85... The average levels are .90-1.30. The doctor said I should not worry about it because I was close enough to the normal levels.
I have also lost about 20 pounds by eating a wealthier diet. I was at 5'8" 170 pounds and now I'm 5'8" 150 pounds. In a couple weeks I will see a gastroenterologist.
Truthfhulp, I did call you out because you're assuming that I'm a troll, or a scammer without any proof. I have already had private conversations with several members of the forum and I have never asked for sympathy, or money in return. Also, I never got my hopes up because with my luck, I doubt someone would actually do something that unselfish. Everyone is out for themselves instead of trying to help each other out.
Interpol89,
Dude calm down. No offence, but you have the signature of what a troll and scammer is, in real life. I was just testing you who you really were. There are people going around the internet fishing for money the same way you do so it’s natural that I’d suspect you’re one of them. You haven’t been out long enough on the internet to know that. I understand, you’re upset because you ‘private message’ me asking for the money and I refused and told you politely it’s a mistake and apologised. Instead of private messaging me again, you come back here and flare up on the forum. That tells me something about your intention and level of honesty. But do you honestly think anybody in his right mind would send you, an unknown person, $65,000 AUD?..lol. Be realistic Bro, you should have understood that already. There’s no need for harsh words. Take care.
@truthfulp, dude you're a pathetic human being for playing games like that. Everyone here is on the same side. We're all trying to figure out ways to cure, or diminish our symptoms from PATM. So far, you're the only troll I have seen on this forum.
Here's a couple of videos on how to get rid of parasites:
https://www.youtube.com/watch?v=18tyfkjmg1U
https://www.youtube.com/watch?v=W-oWBKLFRQw
I tried to increase the potency of the Dr. Oz remedy by making a garlic, honey and papaya seed smoothie... It was not a good idea. The garlic made it almost impossible to get down. It's better to just stick with the papaya seed mixed with honey. We are also supposed to stay away from sugar and grains for about a month.
Oh ya, called that place, they dont accept insurance as i already anticipated. If there is a doctor that can cure you, its gonna b that doctor. Ppl from all over come to him, he is an actual MD that has many awards for his recognition in environmental medicine and healing. This guys lagit, not some acupuncture massage therapist that calls himself a doctor like most of them out there that will drain all ur money. Interpol89 u hit the nail on the head w this 1.
Im not glad at all!! Lol, but i understand what ur saying. We are all in the same boat, nobody understands me better than u guys who suffer from the same problem. I truly believe i am in a good position to cure this crap, and if it works for me it has got to do sumthn for others too.
Im going to call the place in Dallas tomorrow. Is there anything i should know b4 i call them? Anything u recommend or experienced from when u called them?
Yeah, every other organization I contacted just said "I'm sorry about your condition, but there's nothing we can do".
I sent them an email explaining our symptoms. Unfortunately, I don't have $6,500 right now.