Ya it's been pretty rough for me the past 8 weeks. Im an outgoing ppl person, so i share ur pain in wanting to b around ppl more. I definitely look at life differently now, and cherish certain things more, like not worrying about weird stuff like this, but theres nothing we can do but try our best to get through this tough time. I want my life back so bad, I will do everything to beat this.
Im glad i found this forum, feels good to have ppl come together and try to figure this ridiculous problem out. I know alot of ppl have suffered for many yrs. I can't imagine having to go that long w this, and i feel for those ppl. I really believe that we are on the right track though,it's just gonna take a lil more time before we get a grasp of this.
A buddy on here mentioned a lab in 2 cities that are close to me. I have been wanting to know the best place that would run tests for things i feel are exactly related to this. Just gonna take a few more parties to dj at, but ill b scheduling an appointment in the near future. Of course i will let yall know when that time comes.
Maybe it really is the nasty stuff we call 'food' and intake to our bodies..
I seriously turn into a sensitive , open, hate able person with coffee and the reactions are, well.. worst to say the least.
Sooo it's definately looking like a bacteria overgrowth/ parasite infection. The different things i noticed on my body, that i really couldn't explain, all led to either certain organs not working properly or parasite/bacteria overgrowth. As of 6 weeks ago when I first realized patm, b4 even knowing other ppl were suffering from this, my own research led me to exactly what we are all thinkin the problem is. Nothin against those who think this is a more spiritual thing, but there is def a scientific reason for this. If breathing practices and other stuff is working 4 you, than great. I feel like some of us are on the right track, and I will use all the resources I have to help us find either a cure, or a solution that will at least make these dumb symptoms a lot easier to live with.
Ju, this is crazy...idk what religion u believe in, but for me, i have wondered did God do this to me for a reason cuz maybe he feels i can handle it? Or is this just something i caught somewhere along the way? Ya this is truly a mystery and is a living hell, but i am slowly learning how to cope w it. Im trying to get contacts from here as i have noticed that talking to ppl w this problem helps. Message me or whatever if ur ok w that.
Im agree with you dj..i have the same observation...in times of nervous and anxiety the patm comes worst.. i already try the accai berry juice to strong my immune system but nothings changes with the patm..
Pnut!!!! I appreciate your info and thanks for being the first person to respond lol. Wow over a decade?? I have found out on this forum that some ppl are very tenured w this condition. It is so horrible, and i agree w others that the first couple yrs will probably b the worse, but i am dedicated and will try every last option i have, all within this yr. I already have packages coming in for targeting bacteria, candida overgrowth, supplements,probiotics, cutting out sugars, grains etc, dewormers, and supplements that target organs including glands within the endocrine system for possible hormonal imbalances.
I never knew any of this stuff, but as of a few days ago, this is what ive learned. I have witnessed already that anxiety and nervousness seems to make conditions worse. Im VERY observant and will do all i can to figure this out, wish me luck. # I do this for all fellow PATMERS
Im curious pnut, what has it been like these past 10 yrs for you with this condition???
Hi Dj. I usually lurk on this forum to see if any strides / breakthroughs have been made, but do not generally post. Your words compelled me to weigh in. I have suffered from this disease for over a decade. In that time, I've managed to find some tools that help to calm the reactions, but not eliminate them entirely. I take the following daily:
*Saccharomyces Boulardii - 2 5B capsules (probiotic)
*Vitamin D 1000 IU
*CoQ10 - 200 mg
*1 Cod Liver Oil Softgel
To control the severity of the reactions at work, I've found that drinking tea instead of coffee, drinking lots of water, and only eating healthy snack food (like raw veggies or a piece of fruit) while at work helps. I eat my big meals when I am in the privacy of my own home.
Also, at night I take an oralbiotic dissolvable tablet to help any breath odor issues. I bathe using antibiotic soap (dial gold or infused with coconut oil is really good). Excersise does help. I believe sweat helps get rid of some of the toxins that our bodies emit daily.
I hope that you are able to find something that works for you, and get some much-needed relief from the stress of this mysterious illness. On days where I feel down, I find a pair of headphones and a good music station help me out.
Good luck and God bless!
Cmon ppl, we need to figure this out, work is sooooo stressful for me now. EVERYONE i walked by today coughed, some only cleared their throat and rubbed their nose, but mostly ppl were coughing. It's not me being crazy when EVERYBODYS reacting, i could understand a few ppl, but this is everybody. I can feel and smell somekind of odor im giving off. Im sure this is the cause, i just dont know whats causing the odor