deformity

[leesh081]

hi there, i only smile on left side of my face as the muscles on my right side dont work. i have full feeling on that side, i cant twitch up that side of my nose, my right eye waters sometimes and i cant close that eye properly-not that i really notice. i am now 29 and have learnt to live it as i was born like this, it doesnt really bother me only when i smile at a stranger and they look at me as if i am pulling faces!!! ha. i am writing this to find out if you know anyone in this world that has the same thing as me as i havent seen anyone else like me-- ever, except from stroke or cerable pausy.
i often wonder and now that i have signed onto this med help i thought id ask yous. or is there even a name for it?
didnt know what category to put it under!!!

[leesh081]

im not sure if ive thanked you!!! i put up abit about myself on a journal and had a wonderful response, a lady refered me to the moebius syndrome foundation page and have since found out that is what i have, thankyou so much for helping me out! i am soooo happy.

[sweetpea03]

They can go for more surgery, but decided not to. It's more about learning to love your own body. You can get the crazy surgeries and try to become "normal" but really it's in your mind that matters with how you view yourself. I struggled for years with my lymphatic malformation and feeling "deformed", but have gotten over that. I have a lot more self-confidence now and have accepted how I look. I could go for more surgeries, but why? I don't see a point to it. All that pain and recovery time just to look different. no thanks.

[leesh081]

thanks margypops have done the journal, didnt even know about it as im learning so thanks heaps! and can your friends do anything about thier faces sweetpea?

[leesh081]

i have one doctor who wants to try accupuncture and another who said he can take something out of my leg which acts like a rubber band and put it in my face, i didnt take up the offer as idont want to go that serious into it, i wouldnt mind accupunture. but as i said to my mum even if i won lotto i wouldnt change my smile. she cried. but ya know it really is nice when you meet people and they treat you the same as anyone else and like you for you and dont judge a book by its cover. its only sometimes when say your walking towards someone and they smile so you smile back and then they look at ya funny like "whats her problem" or your sitting at the lights and guys pull up next to you and say hi i go bright red and aviod looking at them, id love to just turn around and say hi ya having a nice day? not that i want the attention i am happy with my man but i guess its just that confidence thing! i dont let it bother me to much i just carry on like everybody else. just wondered if any one else out there like me. thanks everyone.

[sweetpea03]

I have a couple friends with malformations(lymphatic and vascular) on the side of their face, who look like that....

[margypops]

I dont know anyone but if you put this up so others can see it, maybe on a journal it will get more feedback . I am sorry it must be hard to deal with .Have you ever had a Doctor/Specialist  check it out see if anything can be done to correct it ?