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Life Or Death

Im 29 weeks pregnant, carrying a boy . He has A Lower Urinary Tract Obstruction which basically means his kidneys arent working so it stopped his lungs from forming . I've had over 5 procedures/surgeries to help and his chances of survival after birth went from 10% to 30% now down to 5% . Im so attached already. He's a super active baby and i love him more than anything. How would u guys deal with this? To know your child isn't going to survive after the cord is cut. Im 20, and this is my first pregnancy.
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Avatar universal
I'm praying for u and ur baby boy, and so sorry u have to go  through this. Remember drs r just people they can be wrong and have faith God will only give u what u can handle. I had my son at 27 and 6 he stopped growing but I was on prednisone my whole pregnancy and that made his lungs develope or he wouldn't have survived just wondering if that could help u. Also when I first got pregnant they also discovered I have lupus my platelets were putting me close to death and they said my son would have definite fetal damage and I should abort also because I could die at the birth, well they were wrong my son is totally normal despite being born 3 months early and I did come close to death but in here so they were wrong. Just enjoy ur time with ur wonderful baby. Good bless u
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Avatar universal
How are things
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Avatar universal
Thank u guys so much , my heart is heavy but i will get through this. Thanks again everyone for the love and support
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Avatar universal
Jesus can heal the little baby boy.. Dear Jesus heal this precious baby boy Lord in Jesus name.. :) we have an awesome God.. that love us and hears us.. so every people praying for this family and the little miracle guy
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Avatar universal
God can do ANYTHING! Have faith and whatever is meant to be will be. Either way no matter what lies ahead of you remember GOD is already there. ;)
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I am so sorry you are going through this. All the other moms are right pray because miracles do happen everyday. I will keep you and baby in my prayers.I hope everything works out for you.
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I think my cousins baby had this And got surgery to fix it. Hes fine now
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Avatar universal
If u need someone to talk to add me im here if u need to talk
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Wow sweetie I'm so sorry you're going thru that, all I can tell u is, pray, is helping me with this pregnancy, so I know God will help u and ur baby
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*loving enviroment
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Avatar universal
I'm so sorry that you're going through this :( I can't imagine how heartbreaking it must be....sounds like you've been through so much. If I was facing a situation like this I would want to have as much time with my son as possible, and surround him with love just like if I had an older child with a terminal diagnosis. Have you heard of perinatal hospice? Its a type of hospice care specifically for babies who are not expected to survive long. The goal is for your family and your baby to be able to say hello and goodbye in a living, respectful environment while making your baby as comfortable as possible. There's a website with information about what to expect and where to find a program in your area. www. perinatalhospice.  org. (Just take the spaces out).  Surround yourself with as much support as you can. I'm praying for you and your sweet baby <3
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Avatar universal
So sorry to hear that. Hope everything turns out well for you and the baby
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Avatar universal
Im so sorry youre going through this.. have faith to our God..sending prayers for your baby..
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8793709 tn?1409594060
I'm sorry to hear about your difficult situation. I hope you and your baby find the strength and courage to fight through this. trust in god and believe in miracles.
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9137321 tn?1402710290
I'm really sorry and will be praying don't be to down God can heal him!! How did they find he had this? Could they tell on ultrasound or did u have a special test?
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8919982 tn?1400717187
That happened to me wit my son when I was 17 yrs old but I had no choice bt to abort him since he was going to die at birth or further along in my p.g...my heart goes out to you and I send u my hugs prayers and the best for u and ur baby please do not make the mistake I did because after I aborted my son they found a donor on the month he was soppose to b born.
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8526246 tn?1405601876
I'm sooo sorry for what you are going through. My Prayers go out to you and your baby.
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Avatar universal
My heart goes out to you & your little angel this just put tears in my eyes reading it but have faith & pray I am praying for you as well God Bless Baby Boy & You but I would check & get so many other opinions too you never know
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Avatar universal
I'm so very sorry. Words can express how much myheart aches for you. My personal opinion is that life begins way before birth, so don't cut yourself or him short of this 9 months of beautiful life you 2 have EXCLUSIVELY shares together, in your case it may be the biggest gift you will ever receive. I will pray for you to some how find peace and comfort along the way, also healing for your son.
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7552771 tn?1469929649
I don't know what I would do. All I know is I would try and enjoy every second I do get to spend with my son inside me. Just remember he does know who you are he's the only one who knows what your heart beat really sounds like. Good luck. You're in my thoughts.
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Avatar universal
and to everyone that has asked , theyve done all the possible surgeries they can. Ive had multiple catheters placed in his sack and bladder. It worked but then his kidneys basically stop functioning .
Long story short,
Kidneys produce the amniotic fluid the baby needs to survive inside the womb ,
That fluid helps form the lungs. So without kidney function and or the fluid its impossible for lung buds to form and grow , so he wouldnt be able to exchange air in and out (breathe) .. u cant breathe without lungs, the situation im in is VERY rare, happens in about 1 in 100,000 pregnancies. Im just so devastated. Why me? But ive come to deal with it a little better. Im in the hospital now with a kidney infection myself. But hopefully god is doing this for a great reason. U guys r like a family here and i feel a lot better thanks
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Avatar universal
Thank you guys so much. Never knew there was so much support here especially from others that have no clue who i am .
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Avatar universal
Can they do surgery immediately after he is born or anything? With all the medical advancements there has to be something. Maybe do some research and see if there is anything that you haven't already done. Don't give up, as the other ladies have said its up to God. Just have faith and pray. My heart and prayers go out to you.
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4542187 tn?1402677307
I'm so heartbroken for you....what a serious trial you are going through.  I won't give advice because I can't presume to know how you feel or what you're thinking. I'll say a prayer... and keep you in my heart, you and baby. Babies are a gift...no matter how long we get to keep them. Just love that baby for however long ...be it a minute or a lifetime...
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