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FROM CHANTAL

As most of us knew Jesse had been in the hospital for a few days now. They discover that he WILL need surgery tomorrow, so if everyone could Please pray for jesse that would be great and prob. mean the world to Chantal.

Here is what she wrote me today:

The condition is called biliary atresia. They still don't know if that's what he has for sure, but if he does, the surgery could actually last up to 5 hours...not 2 hours. =( And if they do the full surgery, he will be in the PICU (icu for kids) for 2 days at least. I feel like I am dreaming. I just want to wake up and have my normal healthy baby back. I'm glad they let us go home last night! What a blessing to get good sleep in our own bed and snuggle time with my baby before tomorrow. We have to be at the hospital by 8:15. The last nursing session before surgery will be by 4:45am and between 4:45 and 6:45 he can only have pedialyte or water if he is hungry. Then IV fluids in the hospital when we arrive. I keep praying and hoping when they go in that it's just a simple blockage that they can clear it and he can recover from quickly. I can always hope! But only God knows. Basically, if he has this disease, there is a chance he may need a liver transplant in the next 2 years (or sooner) or sometime in his life. I will be going to this hospital once a week for a year for testing and monitoring. Then every 2 weeks, every month and every 6 months until he is 18. I sometimes hope it's not biliary atresia, BUT at the same time we need a diagnosis and if it's not that, then the poor baby needs more testing and more poking done. I am just hoping for the best. The ONLY symptoms he has are, greenish/whitish stools, and yellow skin. Other than that, he is normal! He is gaining and growing properly according to their charts, so that kinda shocked them. He is strong, I know he is. But if the procedure to correct it fails, he will need a liver transplant without question. I'm an emotional wreck...please just pray for us. You can even let the ladies know everything I told you here. I'm so thankful for all the support and prayers. I will go now and try to keep everyone updated on everything when I can and when I hear something.

~chantal~
18 Responses
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924332 tn?1284573918
Praying for your baby and family!! Hopes he keeps progressing well!! ((Hugs))
Helpful - 0
280369 tn?1316702041
thank you so much.
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Avatar universal
im so sorry you are going through this ,you and your baby are in my prayers
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290867 tn?1333569278
I will be praying for her!!! Please keep us posted if  you find out anything
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Avatar universal
Im glad to hear he is stable, you and your family is in my prayers

xoxo  Latrice&Trinity
Helpful - 0
280369 tn?1316702041
I am posting an update now! Jesse is stable as of right now.
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99457 tn?1321878677
is there any more news?
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1055824 tn?1387073424
I Hope everything goes well! Chantal and the family are in my prayers and Godbless baby.
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750055 tn?1364771370
I'll keep Chantal, baby and family in my prayers ((HUGS))
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376148 tn?1309899577
PRAYING PRAYYING PRAYING hunni!!
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949288 tn?1263738633
((((HUGS)))) Chantal, all of my prayers today are for you, Jesse, and your family.
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Avatar universal
The whole family, especially Jesse are in my prayers!
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362249 tn?1441315018
Again Chantal prayers and hugs hun! I will be thinking of you guys!!
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964745 tn?1265386854
Praying for Jesse and your family!
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676912 tn?1332812551
Praying for your family and little Jesse!
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470885 tn?1326329037
My prayers are with you and your family now!!  My son needed surgery at 2 weeks, I know that it's far from easy to see your little boy go through this (((HUGS)))
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525485 tn?1314361301
PRAYING LIKE CRAZY FOR YOU GIRL!!!
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Avatar universal
Thank you for posting the update...poor little guy (and poor Mom and Dad).  
Helpful - 0
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