Please can you help me with a medical question? I am very worried about a dear friend. :( I recently learned more about a condition she has, and am very worried for her.
Apparently they don't know exactly what it is, but she has an outgrowth or tumor of bone growing from her skull and it is pressing on her brain and down into her sinus, which is potentially very dangerous. It is apparently altering her personality, causing her migraine headaches, and I guess possible brain damage? I don't know. I am very worried.
I was told that this was called "Fibrodysplasia", but that can't be right because I looked that up online and that is apparently a disease that causes the entire body to become paralyzed with uncontrollable bone growth, and she doesn't have that.
She also apparently has a benign tumor in the back of her neck, I was told this could be "Neurofibromatosis".
Please, I want to help her. If anyone knows any information that could help her or knows of any procedure or treatments I could suggest for her, tell me. Apparently her doctor thinks nothing needs to be done at this time, but I feel quite differently. She is clearly suffering greatly. Thank you. :(