I have a chronic pain in my leg, input is welcomed

[vanessaacosta]

This may be a drastically long read, I'm sorry.
I think in order to have a full understanding of my overall health you will need to know a little about me, I am currently 20 years old, 4 ft. 11 in., 90-100 lbs. and in relatively good health except for my leg and being diagnosed with asthma in elementary school. For the past 5-6 years, I have been affected by a really mysterious problem with my right leg, as far as I can remember first noticing there was something "different" was during 9th grade, initially, it started off as noticing I couldn't straighten my leg while sitting and a sometimes painful lump on the bottom of my foot but other than that I was normal in all other activities and simply ignored it as I thought it would just "get normal" on its own. It did not. Over the course of my high school years, it progressed to become worse in a sense but not intolerable nor did it seem to affect my quality of life so I continued to pass it off as nothing. I tolerate pain well. My leg would give out on its own while walking, my friends would poke fun (in good spirits) when it happened and ask why I was break dancing,  jumping on one leg was impossible, yes I tried. It immediately gave out. On the occurrence that it did give out, it would sometimes cause me tremendous pain in which I was either frozen in pain and brought to tears or I immediately jolted in pain and simply stood in place until I regained the composure to continue what I was doing. At night it would sometimes spasm as I was drifting off to sleep and the sudden jolt would cause me to fully awaken in pain. I cannot sleep with my leg "straight" (completely flat) against the bed because the pressure will cause pain. Sometime during high school, I finally decide to tell my doctor and through several people doing physical exams (which caused me a lot of pain and laughter) and in astonishment of my weird non-straightening leg sent me to physical therapy for 6 weeks. It did not help or at least I didn't see an improvement. Then again the summer after I graduated high school I was sent to physical therapy except for this time whilst doing exercises in front of my therapist I could not for the life of me lift my leg whilst lying down on the bed and so she in person the very same day walked me to the pain management department. I did not want to learn how to "manage my pain" I'm 19 years old, this wasn't normal. I don't want to learn to live with it. So I never went back to that children's hospital. Most recently (within the past year) I transferred over to a different hospital as I was an adult now and I had the opportunity to see a specialist. It was very unprofessional and rushed. He somehow concluded I had a noncancerous tumor on the bottom of my foot, just by looking and said my hamstring muscles were probably weak and to come back in ten days after doing one exercise he taught me and to bring my medical records. Again I didn't go back. I still continue with my exercises but I see no improvements. I'm definitely not a medical professional and maybe I give up on my doctors too quickly but I also have never been back as my pile of hospital bills aren't exactly worth all the hoops and hurdles I have to go through. Most recently my pain has progressed. I've had to drag my leg once in a while as it would be stiff and in pain, it does not give out as often anymore but it has gotten stiffer and is somewhat hard to fold on some days and almost always swollen around my joint. I think I can safely conclude I can not run. Warm showers to my surprise makes the pain worse. At the children's hospital, I was prescribed an anti-inflammatory drug I believe, so I take the prescribed Naproxen 150 mg. when I know I'll be going to the store and walking for a bit, but other than that I refuse to take it as prescribed 2x a day as I'm not a fan of becoming dependent on pain killers, I simply choose to tolerate the pain and my past doctors always seem to doubt the level of pain I'm in because I don't "ice my leg, use heating pads, or take Advil or Tylenol" I've even had one PT who wondered if it was all in my head and inquired about numbing my leg and seeing if it hurt, and yet never followed through to see if that would work. I've taken an EMG and MRI and cat scan tests on my leg and other than a tiny bit of liquid behind my knee it wasn't a big concern, but as I was a child at the time they didn't ever really explain any results to me or my mother as her heavy accent may have seemed like she wasn't a fluent English speaker. So at this point, I'm just really perplexed as to whats wrong with my leg as I have never even injured my leg, which all the doctors assume maybe I injured it in the past. I was a visual art major in high school and was never an active person. Any input is welcomed.