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Rare Disease, Vasculitis

I'm looking for a Dr (on Expert Forum) who knows anything about Leukocytoclastic vasculitis - skin and systemic versions. I see a Rheumatologist currently; however, no one seems to know very much about it and the difficulties I have.
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Avatar universal
MEDICAL PROFESSIONAL
Hi,
How are you? Leukocytoclastic vasculitis usually results from deposition of immune complexes at the vessel wall and presents in different forms and in association with different diseases.It is importanht that the specific type and systemic involvement  and underlying cause be identified. History of drug intake and of preceding infections, biopsy with immunofluorescence, differential blood count, urine analysis and throat swabs are important considerations. Colchicine may be given for chronic or relapsing types. It is best that you discuss this with your doctor. Referral or seeking another doctor's opinion may also help. Take care and do keep us posted.
Helpful - 1
Avatar universal
MEDICAL PROFESSIONAL
Hi,
It may indeed be possible that your history of chemotherapy is an important factor. But I am not an expert on this condition and I suggest you  check out my source-Pubmed's article on the management of LcV and get in touch with the authors Dr Sunderkotter et al  to clear any doubts. Hope this helps. Best regards.
Helpful - 1
Avatar universal
Thank you for your reply. A pathological test of muscle tissue from my leg confirmed that I have LCV. I have difficulties with (1) bladder/kidneys, a Urologist is treating me for ICS, (2) colon, a Gastroenterologist is treating me for IBS, I have recovered from colon cancer, (3) respiratory which I manage with Rhino-Court and other meds, (4) feet - podiatrist keeps me going with injections, (5) reoccurring infections, etc. But what interested me about your reply was the statement that it is important to identify the underlying cause. None of my current Dr's have indicated that this is possible. You also mention history of drug intake. I was not a drug user as a young person, however, I had colon cancer at age 18 with chemo-therapy - is that what you intimated? Could drug use by my mother cause this?
Helpful - 0
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