Aa
Aa
A
A
A
Close
Avatar universal

help, daughter 9 years old diagnosed with MBL deficiency

Hi everyone, my daughter has always been unwell and I lost my job as a result. However the past 2 years have been worse. She developed a strong allergy to all dairy and was diagnosed with MBL Deficiency. I can't come to term with the fact that there is nothing we can do! what a struggle to fight with doctors, emergencies and all. She is also allergic to penicillin so doctors take so long to figure out what to give her!
I dont think I can cope. I am turning into a cook as all her food must be dairy free and additives free, and I am serving as a nurse when i dont know anything. I cant work. i dont get paid. no one explains anything.
How are you guys coping???
0 Responses
Sort by: Helpful Oldest Newest
Have an Answer?

You are reading content posted in the Rare Diseases Community

Didn't find the answer you were looking for?
Ask a question
Popular Resources
New study links cell phones to slightly increased cancer risk. Should you be concerned?
A list of national and international resources and hotlines to help connect you to needed health and medical services.
Herpes sores blister, then burst, scab and heal.
Herpes spreads by oral, vaginal and anal sex.
STIs are the most common cause of genital sores.
Condoms are the most effective way to prevent HIV and STDs.