Hi everyone, my daughter has always been unwell and I lost my job as a result. However the past 2 years have been worse. She developed a strong allergy to all dairy and was diagnosed with MBL Deficiency. I can't come to term with the fact that there is nothing we can do! what a struggle to fight with doctors, emergencies and all. She is also allergic to penicillin so doctors take so long to figure out what to give her!
I dont think I can cope. I am turning into a cook as all her food must be dairy free and additives free, and I am serving as a nurse when i dont know anything. I cant work. i dont get paid. no one explains anything.
How are you guys coping???