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rare diseases

My husband started have distorted vision about 1 1/2 years ago.  He says its like looking at words in a bubble.  There is nothing missing but part of the letters are shifted.  He went to his our regular opthamalogist who inturn reffered us to eye specialist.  He has seen many different doctors and has had several test performed from retina scans to mri.  The only test that showed anything was the high density scan of his retina, all other tests were ok.  The last time we went to see the doctor who diagnosed him with microscatoma. The Dr said he was stumped.  Not what we wanted to hear.  He also said he felt as though he would not get any worse.  A year ago he aslo said he other eye would not get worse and that it would not go to the other eye.  His right eye is significantely worse and his left eye started two to three months ago.  I do not want to leave this to chance.  He is only 41 and father of two young boys.  If anyone could help I would greatly appreciate it.  
Desperate wife and mother
Sparkey87
Somerset MA
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Avatar universal
Thank you for your time.  The Dr that diagnosed my husband is a neuro opthamologist who was recommended to us by our opthamologist.  He works out of tufts medical in Boston MA.  If anyone knows of another Dr we can try please let me know.
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Avatar universal
I suggest you see a good neuro opthamologist and take all your scans with you when you see him.

These folk are not eye surgeons (mere opthamologists) but eye surgeons with knowledge of neurology.
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