Thanks for your reply. It was more helpful than most of my doctors. They have given up on me. I apologize for voicing my displeasure earlier, but when you have been in pain for so long, you become quite irritable. I am going to try to get a referral to a respected medical clinic in my area.
Thanks again
The disease most commonly associated with ACE is sarcoidosis. However, it is no longer considered to be a means to monitor disease activity and/or response to therapy.
Less well known is that ACE can be significantly elevated in a number of other conditions including multiple sclerosis, Addison’s disease, hyperthyroidism, diabetes mellitus, alcoholic hepatitis, peptic ulcer, and the nephritic syndrome and, perhaps, with chronic fatigue syndrome.
Other pulmonary disorders with significantly increased ACE include emphysema, asthma and lung cancer.
The possibility of adrenal insufficiency is intriguing. The presentation of this is a long history of malaise, fatigue, anorexia, weight loss, joint and back pain and darkening of the skin.
I suggest that you discuss the possibility of your having one of the diagnoses listed above as less well known conditions associated with significantly elevated ACE.
Good luck.
PLEASE FOR GOD SAKE HELP ME. Doctor's have found no evidence of sarcoid but ACE levels still very high. I am suffering. Should I ask for a referral and get a second opinion?
As Americans, we need to realize that many of these "doctors" don't work for us, they work for their hospitals and indirectly work for the insurance companies. They could care less if we are suffering and need help. Thanks for all your help "MedHelp", National Jewish. You succeeded in making me feel marginalized and hopeless. All that is left for me, a young man of 28 years old, is death.
Well, either my question is way too difficult to answer, or I am experiencing the same type of apathy that I receive from most doctors. It is a shame.