Aa
Aa
A
A
A
Close
Avatar universal

necrotising sarcoid granulomatosis

Good moorning,

I am a women I have 37 years and in february 2008 after surgery of lung my diagnosis has necrotising sarcoid granulomatosis stage III. I took prednisolonum for 1 years and 5 months. Cough when I was sick and could not breathe, I had a fever .
3 weeks have passed since  I don't take prednisolonum.I feel well but I wont to know if this disease may come back and how can I to prevent ?
What tests need to check ?
He cured someone with this disease?
            Thank you very much
3 Responses
Sort by: Helpful Oldest Newest
Avatar universal
Hi annaderol,

I sent more information to you in a private message.

Sarcoidosis is a systemic (multiple organ) disease. A lot of patients only present with symptoms in one organ (usually lungs). Some patients have it in many organs or tissues, or patients where it presented in the lungs only develop multiple organ involvement later on, but it's the same disease where ever the granuloma, and inflammation are at. Even though I don't have eye, or heart involvement now I still have to get my eyes, and heart checked at least once a year because it could spread to those areas as time goes on.

I hope to hear from you, and I would be happy to answer any questions you have. Take care
Helpful - 0
Avatar universal
Hi ,Corvin,
Yes my problem is only the lung.
Thank you very much for comment I know the Marshall Protocol ,I reed this protocol but here in Romania nobody physician don't wont to try the Marshall Protocol.
My disease is a type(form) of sarcoidosis. I hope this type (form) is less bad then sarcoidosis. I don"t know very much about my disease:necrotising sarcoid granulomatosis.
   Thank you .
Helpful - 0
Avatar universal
Hi annaderol,

You have Sarcoidosis with lung involvement, is that correct?

My Pulmonologist monitors me by doing lung function tests, and chest x-rays.

There is a cure for Sarcoidosis, it's called the Marshall Protocol, you can google it, or check out the links in my journal, I have most of the important links in there.

I'm just barely starting the Protocol so I can't say personally yet if it works, but there are thousands of Sarcoidosis patients already on it that are having a lot of success with it. The founders of the Protocol had Sarcoidosis themselves for decades before using the Protocol, and are doing very well now. The things you read, and hear from mainstream sources about Sarcoidosis "going away", and being a benign disease has no basis in science, and is a myth. People with Sarcoidosis go in and out of remission periods were there sypmtoms decrease, and they find it easier to function, but the disease doesn't go away for good unless the underlying cause is dealt with. In fact each relapse will be worse than the last, that's what has happened in my case.

The Protocol is a curative treatment not a palliative treatment, which is counterintuitive to conventional medicine. There also isn't a book or Dr Seuss juice to buy, nobody is trying to make money off of sick people with this Protocol, all the information is free on the Internet, you just have to get your physician to prescribe the medications you need, and follow the guidelines very closely.

Anyways let me know if I can answer any questions for you, you can also send me a PM anytime. Take care
Helpful - 0
Have an Answer?

You are reading content posted in the Respiratory Disorders Community

Didn't find the answer you were looking for?
Ask a question
Popular Resources
Find out what causes asthma, and how to take control of your symptoms.
Healing home remedies for common ailments
Tricks to help you quit for good.
Is your area one of the dirtiest-air cities in the nation?
A list of national and international resources and hotlines to help connect you to needed health and medical services.
Herpes sores blister, then burst, scab and heal.