Hello Friends! Just thought I'd pop in to let you all know that I am still around. I know I haven't posted or come around in a REALLY long time....
These last 6 months or so have been a real roller coaster for me, which has contributed to me not being around. As some of you know I got my dx last Dec or Jan (I can't even remember anymore. I think it was Jan). About 4 months ago I got my dx taken away from the neuro. It was taken away because there were no changes in my MRI in the last year.
Ever since then, I have not gone back to see any doctors except to get my medications refilled and 2 trips to the walk-in due to severe pain. I am slated to go back to my original doc in about 3 weeks to see where we go from here.
On a positive note, I got fitted for a new AFO that I should be getting this week. It's called "Toe Off" and it's supposed to work fairly well. So I am hoping that will make me a little more mobile, (I've gained about 30 pounds in the last 1 1/2; 10 in the last 3 alone!) so I can lose a bit of this weight.
Anyhoo, I hope you are all doing well! I also want to thank those of you who have continued to send me notes and emails with words of encouragment, thoughts, prayers, etc. Although I don't know if I will be hanging around much, I am still here and pray you are all having relatively symptom free days/weeks/months!
Love and hugs!!!
Sarah