Hi guys well sort of a result then.
I have come to the conclusion that the neurologists have so many patients that they get us mixed up.
I mean when i find letters from the neuro to the doctor saying I DEFINITELY have lesions even possibly demylinating ones, then when I see him he says there is no evidence of MS I wonder sometimes whos notes he is looking at lol.
Anyway my daughter is on lyrica. She has no problems with it. When she had her hysterectomy they trapped a nerve for her in her stomach and she is in pain all the time, but the lyrica works well. AND BELIEVE it or not she had chronic IBS and has not had it since taking this stuff, and when i did research they are finding that lyrica can work wonders with IBS lol....so she feels even better.
The thing is how can they give you this stuff for nerve pain if you have migraines only .....
Nerve pains are neurological in design......
Lymes disease like binxy said is hard to diagnose.
Anyway like i said my daughter is happy with lyrica it is working well for her.
big hugs. xxx maria
So glad this doc turned out to be human after all!
I have seen the difficulty of getting off cymbalta, as binx mentioned.
Warm spring wishes for you.
I had a nice appt...encouraging....I am going to read up on both meds....face is hurting still but I have upped my meds we will see.
Keep you posted...If it does not seem to help I am not waiting for next appt...I'll call him..
I'm glad to hear you had a good rapport with neuro it makes all the difference.
I can't advise you on the meds he mentioned, although I've heard some bad reviews with cymbalta.
Good news that Lyme test was negative, but I like the idea he will be re-testing to be sure.
well, this sounds like a much better experience with your neuro than you have described in the past. i am really happy about that.
interesting that he is more seriously considering lyme disease. you may want to post over on the lyme board or communicate directly with wonko about proper testing and why the test most docs run is hardly accurate. she is incredibly knowledgeable, as is jackie on the lyme board.
your neuro is right that it is tricky to diagnose, but there is more reliable testing through igenex labs here in california. it is expensive, but you can submit forms to your insurance for partial reimbursement. we have super crummy insurance, but i am actually getting a little bit of $$ back which shocked the you-know-what out of me. i go in on 3/24 for my results. i'll be sure to let you know the outcome of that appointment.
i would research lyrica and cymbalta if i were you. cymbalta is primarily used as an anti-depressant, but was found to relieve neuropathic pain associated with diabetes, as your neuro said. i have read individual accounts of success with cymbalta, but have also read some not-so-nice stories about it, especially when it comes to weaning off of it. again, these are just individual experiences, and everyone is different, but i suggest you do your homework if you are considering trying one of these meds.
i tried lyrica about 18 months ago, and it made me really spacey and unable to function in the mornings. then again, i am a real weirdo when it comes to medications. i have a wacky response to nearly everything and anything they throw at me which is a bummer.
so, these are my thoughts, for what they are worth. i hope you are doing really well and having a lovely day.