did u feel better after increasing vit d

[testdeprived]

my vit d used to be 19, and now it is 60////and  i h0nestly havent noticed any improvements. maybe mild bone improvements but im pretty much as sick as ever.

[testdeprived]

**** doctors i give up. 2 years ive been fighting for a diagnosis. i diagnosed myself 2 years ago with a brain  tumor, then my mri said i had a 2mm one. then i go and get another mri 1.5 years later and they say its not there...so i bring the films to the neuro endo and the neuro endo says it is there. soo i contact the facilty that says its not there, and they call me and trll me that the neuro endo agrees with them.

meanwhile i have symptoms everyday and feel like ****.

every symptom under the sun.

im 21 and feel like im 90.

my primary caare is the only doctor who truly believes in me, she wants me to go to  research clinic like nih, but how can they accept me with this new mri that isnt showing my tumor that i know is there.

also how can the ffreaking neuro endo call herself an expert and send me away with a cortisol an cretinine out of the normal range. cortisol and may be a symptom of voetraining but they are also a symptom of cushings

im gonna have to accept that ill have to be like this for life. everyday my vision gets more blurry, my jaw hurts more, my joints hurt more, my headaches and appettie get worse, my fingers and toes hurt more, my thinking and motor skills deteriorate more,my insides stab more, and there' nothing my primary can do shes just one person.

[testdeprived]

also lots of symptoms overlap...taking headaches off my list would do me no good....ust because it might be from overtraining.

also i am not overtrained as  isaid i know how to rest properly and eat a decent amount of cals most days...although like  i said some days  i dont ea t much.

its hard for me to get cals in. only way is to eat like 1000-2000 from one meal then the rest from ensure plus shakes

im nautious about 3/4 of the day...so i usually dont eat till like 5ppm and at that point  is tuf myself with a big 1000-2000 calorie meal so i dont lose weight...then i  will grafually drink a pack of ensure plus a day.

yesterday though i only ate a chicken sandwhich then went to sleep at 6

[testdeprived]

i dont have pituitary cancer  i have a benign tumor.  i dont go to doctors anymore besides my primary care. doctors have been no asssistance. she wants me to go to nih research clinic once  i sort out whats going on with the mri that the radiologists cant read ><

[MrsAristotle]

Hi I dont mind you not returning the hug but you didn't read my post. I did not say I think your problems are ALL over training........please re read what I said..........

I have copied one piece for you to read again...

..............I dont want you think I am dismissing your anxiety over pituitary cancer  in favour of over training FAR FROM IT, I just want you to be able to go to the doctor with a firm symptom sheet and I am sure this will be more productive for you. ,,,,,,,,,,,,,,,,,,,,,

I simply ask you to look back at your symptoms and if some of them fit over training syndrome then you can take them off your list of symptoms. The less symptoms you present to a doctor the less likely you will be labelled as anxious.

So if you are going to be annoyed with me lol, at least read my posts properly as you will see no way did I dismiss you as having pituitary cancer.

Anyway here is another hug I have big shoulders lol. xxx Mariax

[testdeprived]

i cantreturn the hug though ause im still a little annoyed you think its an overtraining prob and not this blasted tumor :(

i try to get 3-4k s ay but some days i get less...some days i have no app ad would be lucky to get 1k...but usually around 2500-3500

[testdeprived]

im prett ysure the tumors causing it..thanks for the hug

[MrsAristotle]

Hi well i hope you dont mind me chatting to you about this yes you can shoot me but I am like a terrier at a rat hole.

Your elevated cortisol is found in overtraining.

Over training can cause nausea. and headaches.

To train properly you need to be taking in calories of around 2878 – 2978 if your weight lifting.

The least calories you take the harder it is to pack in muscle so you train more trying to get the muscle and this is how the syndrome starts.

I know a bit about training and weight lifting because when I was younger my older brother used to weight train actually sometimes he used me to lift with lol. He is a 6ft 4in brick house wall type. He is also a martial arts black belt in a special Dan. So I was bought up with my bro always working out and I remember he was very particular in what he ate because if you dont do it right it can cause problems.

Anyway you need to look at your magnesium and potassium levels. Low potassium can cause headaches......and CNS symptoms and magnesium can cause nausea.

This is a brilliant web site about overtraining and it might help you understand why I am pointing that way ONLY FOR SOME OF YOUR SYMPTOMS.

http://www.livestrong.com/article/41773-overtraining-weight-loss/

I am just asking you to step out of the box for a moment and look at your symptoms. If you present to a doctor with them all they just look at ALL of them and think well what the heck 90% dont fit pituitary cancer. My grand daughter had this when she was born and she has a growth deformity because of it, she is 23 now and only 4ft 5ins tall, but thankfully very healthy and fiesty too lol.

I know you want to train and I understand believe me why you do I have 9 grand children and 3 step sons, 1 step daughter  and  2 daughters. Believe me I have been through some trials and tribulations with at least 4 of them and 2 on going (one at 17 cuts himself) SO I do understand ok why people want to do certain things. I am 59 and used to be trained youth leader and counsellor and have met all types lol so I do speak with some experience in life.

I say as I find as I want you to get the diagnosis you seek, but feel that unless you look outside the box people will label you as anxious etc which I am sure your not.

So would it really hurt for you not to train so hard for a few weeks say. Yes go to the gym but dont do weights, and try and take in more calories, maybe supplements with magnesium and potassium in and see how you feel. IF there is no change in how you feel then you know it isnt that and can tick one more thing off.

I have had to do this myself. I have written down my symptoms and people have pointed out to me things that could belong to something else, so I have trained myself to look outside box, so when I see my GP we only ever focus on the more important symptoms that really bother me....all the rest can wait for now.

I dont want you think I am dismissing your anxiety over pituitary cancer  in favour of over training FAR FROM IT, I just want you to be able to go to the doctor with a firm symptom sheet and I am sure this will be more productive for you.

Anyway like I said dont shoot me I am trying to help you lol.

I have a knack of being able to read in between lines and perhaps this is a curse for me not a help lol.

Anyway your not too old to have a hug .... Mariax

[testdeprived]

but  idisagree that mys ymptoms are from overtrasining. overtraining does not cause headaches,nausea etc.

[testdeprived]

i feel alright when working out...if  ididnt work out  iwould shrink into a very weak individual and would have no energy. workoing out is the only thing that makes me feel like im not dying or wasting away. luckily im still able to go to school as well. although my eye sight is getting worse.

plus lifting is the only thing i truly enjoy anymore...although since my cortisol is elevate3d i havent been making much progress and thats depressing lol

[MrsAristotle]

Hi well as to reading MRI tell me about lol, an MRI result is only as good as the person reading it, and they can interpret things differently.

For example I had a large cluster of white high signal foci in the deep white matter of my brain. The radiologist thought it was my age (I am 59 now) and NOT DEMYLINATION which would mean MS.

I sent the film to my uncle who is a radiologist in Italy to read and he told my mother that the foci seen were not from aging or hypotension as they were HIGH SIGNAL. Aging only shows spots with low signal. He believed mine were demylination but obviously that still doesnt get me anywhere, but at least I know now that any high signal foci in the DEEP WHITE matter of your brain is not from aging, hypotension, diabetes or alzehimers.

I know you are worried who wouldnt be, but I do think some of your symptoms could be from something else thats all.

Now it would make sense to you over training and if your not eating properly and feeling so unwell is it really a good idea to push your body so hard? Just an observation. I know if you have been doing this for a long time its hard to stop but could you not do other things that are not so high impact on your poorly body?

Have you had bloods for rheumatology? Just a few of your symptoms made me sit up a bit.

Anyway I am sorry you are going through this it must be so worrying.

Keep going though I try to, as I am sure there must be an answer for us all.

Big hugs. Maria

[testdeprived]

i am pretty sure the reason i have low vitamin d, high cortisol, and SOMETIMES low testosterone, is because  f a pituitary brain tumor i have. its so hard for a pituitary patient to get diagnosed though. if it werent for the brain tumor forum, and people who have been where  i was, I'd think i was nuts. although i do have a caring primary doctor, who is going to try to get me into the NIH program for rare diseases as a pituitary patient.

only problem is the last place  i had my mri..is full of incompetent radiologists. thhis place has a 3t machine so i figured theyd be up to date...but nope they dont see a tumor...i got a second opinion from the pituitary center at columbia and up its still there haha..but now i gotta pay for a second opinion(300) and hope insurance reimburses...luckily my primary wrote a note stating it was medically necessary

i could be overtrained from weights...but  ido take rest when i need it...although for how hard  i lift weights...i dont eat close to enough as  i should whch isnt great for a boodybuilder....just hard to eat when u feel like crap all the time...although rionically not so hard to lift

[MrsAristotle]

Hi well I spent half an hour answering your post and zap it disappeared I hit the wrong key lol stupid girl I am.

Anyway first off would you be able to put your symptoms on here for us to see. I have had a look at your posts and maybe other eyes can see things out of the box.

As to vitamin D, it is only a vitamin to help make your bones and cells healthy. I wouldnt think to be honest that it would make you feel great I would put that down to something like B12 injections if you had say pernicious Anemia. Vitamin D has a lot to do so it is just catching up with you lol.

The thing is why do you have low vitamin D and low testosterone? Has the doctor looked at the reason why it is usually some sort of clue......

You say in a post I read that you are a body builder doing lots of weights and stuff could you have OVER TRAINED. There is a syndrome called overtraining syndrome and many of your symptoms could be part of that. NOT SAYING this is the reason but sometimes we just have to look outside of the box.

http://sportsmedicine.about.com/cs/overtraining/a/aa062499a.htm

Dont shoot me I am just looking at everything you never know sometimes some of the bits you are suffering just belong elsewhere, but they can mask what is really wrong with you if that makes sense.

I was wondering if you had some sort of reuhmatological problem in light of some of your symptoms. You I believe are looking at pituitary cancer which is very hard to diagnose.

The big problem about fixating on one disease is you can get dismissed by doctors as having conversion disorder or anxiety complex, even if you really just want to find out why you are so unwell its very frustrating for you and anyone else who suffers an illness that no one takes seriously.

I hope you wont shoot me for mentioning over training but if you could eliminate some of the symptoms as this, it might give you a better picture of what is going on.

Anyway as to your original question I would not expect to see a huge improvement on Vitimin D but you yourself said your bones were better so something good is happening.

Why cant we just get something wrong with us, that can easily be identified and not be one of the few who seem to get rare problems that the docs just scratch their heads over.

I really feel for you. Maria

[faithhopegreatestlove]

Hi testdeprived and Y,
You guys bring up really timely subjects with the Vit D and B vitamins.

The Institute of Medicine just released new guidelines for Vit D. After reviewing a boatload of studies on how much Vit D is enough, they now say we don't need Vit D supplements. I'm really skeptical of this study because there seem to be so many contradictions in it.

They now recommend a higher intake of Vit D -- now 600IU up from 400IU, a lower level in the blood (from a min of 30, now just 20) but say we, Americans, that is, should be able to get all the Vit D we need from our diets and sun exposure.  

(I'm not a nutritionist; I just have a relative who is a sports and performance nutritionist, so I'm the sometimes willing recipient of some enthusiastic nutritional, uh, teaching/coaching/nagging.)

Since about the only food sources of Vit D are fortified milk and juices, fortified cereals, eggs, salmon, and tuna, its hard to believe that I could get anywhere near enough from my diet. I just cannot drink six cups of milk a day, and fifteen bowls of cereal sounds indigestible. Any combination of eggs, tuna, and milk sounds more like a recipe for sulfurous gas for me.

They are saying we don't need such high doses of supplements to get to the optimal level of Vit D, but they don't discuss the low absorption rate we get from most of the tab's we're taking as supplements. My nutrition nag tells me that it is as low as 20% with most tablets.

Whether or not we can get enough and then metabolize or absorb nutrients seems to me to be the key. For example, I was amazed to read that they now think that the development of autism is related to a genetic inability to metabolize one of the B vitamins.

I really think that despite this new study of the studies, I need the supplements. I, too, have had low B and D vitamin levels, and low iron in the past in my blood tests, or I did before I started taking a highly absorbable liquid supplement.

testdeprived, I can't say that I felt better when my Vit D levels went up, partly because my other levels improved as well. I know I feel a definite bump up from the vit I take, but don't know which specific vit or combination of vitamins/minerals are giving me this feeling because it's a multi form.

yevnar, what are they saying about WHY you aren't absorbing _ANY_ B2?

bestest to all,
--faithHGL

[ynevar]

I was also deficient in D.  I think my first level was 16, is now at 30.

I am also deficient in B2 (Riboflavin), they cannot detect any B2 in my system despite regular supplementation and a diet high in Riboflavin.

I was B12 deficient as well as Iron deficient.

The D, B12 and Iron have improved but I continue to not absorb B2.  I am going to see a gastroenterologist.  

What my Rheumatologist said to me is that he thinks some of my pain is due to the nerve damage caused by my vitamin deficiencies.  He said that damage is permanent and I am looking at pain management.  

I kind of went into my long explanation there because my primary care doctor was so surprised that the rheumatologist even tested for B2 deficiency.  That even if people are low, they are almost never devoid of it!  Especially in a Western diet.  So-have they checked all your B vitamin levels?  

Anyhow I know I don't feel much better either... wish I could say I did!

-Y

[illinwithoutacause]

hi testdeprived,

i experienced some temporary symptom relief when i first started taking vitamin D supplements after a blood test revealed my level was 16.  it eventually plateaued and then stopped making a difference.

i know some people swear that it helps improve their symptoms, but even if you don't see noticeable differences, it's important for immune function, bone density, etc., to keep your levels up to snuff.  i take 25,000iu/week of D3 per my primary care doc's recommendation.

best wishes to you,
binx