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Rhythmic Movement Disorder, Can't take it anymore

Hello,

Is there anyone, I mean anyone, out there that has rhythmic movement disorder? I have been violently thrashing my body and head, laterally while asleep or mostly somewhat asleep since I can remember. I am 30 now. It use to consume maybe an hour or two a night but now it is getting drastically worse. I find myself doing it or am told that I, "rock", 4-5 hours a night. Apparently kids grow out of this and the remainder that carry this disorder into their adult lives are autistic or mentally challenged, which I am neither. My doctor prescribed me clonazepam, which does not work and I'm not taking an addictive, benzodiazepine for the rest of my life.
Does anyone relate to my problem and if so what treatments have worked for you? I'm going to go insane!
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Avatar universal
Oh, I can add that after THC intake If I am trying to rock in bed I get disgorge (puke) feeling so I automaticly stop to rock after two-three moves. So if your children do not stop this until 8yo, parents should think about thc oil. If you are adult you decide for your own.

Even when I was sleeping (as a child and adult) mostly I had nightmare's. After cannabis I had no dream at all. That is to beautiful that can be true. But it is! Lieing in bed for 7 hours without move - this what I need after my short (long rocking) life.

The problem is, that is illegal (law and mental) and doctors do not know nothing about RMD in Poland. They still call that 'choroba sieroca' (orphans illnes).


Magic plant is the cure in RMD. Like in epilepsy.
Helpful - 0
Avatar universal
Yellow RMD rockers. I am 34, rocking since 1yo. I can do it all night/day long, mostly not sleep at all. Typicaly RMD people takes 3-15 minuts of rocks and then they go to sleep. Me 'normaly' takes 2-3 hours or more and after short sleep (2-3 hours) I am rocking again for hours. Whole my life I was very exercised and sporty, always doing things for 110%.
Now in age 34 I have NO energy left. My head is very painfull and my heart is weak. (after RMD nights)

The only things is helping me is smoking cannabis (marihuana) thc implementation. After inhalation I am sleeping like a child (min. 7 hours) and in the morning I now what to do:
healthy breakfast, coffee and cigarette (nicotine), then some house work or newspaper or shoping and then the 1st blunt and then I am happy that I am living! and being! Doing everything what normal people do, but maybe little more lazy....
For me it is worth being like that and sleeping and regenerating at night.

THC is making HUNDREDS percent more of melatonina in the pineal gland. The best results I get smoking all day, every 2-3-4 hours. In my country (Poland) it's illegal, so I can not have propper access. So the treatment is selectively.

After inhalation I feel like REAL human, but nobody is accepting this, becouse they still think that Ganja = Devil.

What is another method? Antidepresant's. But this **** will destroy your body, orgasm and everything. So I do not even try it. NEVER ever.
And there is no evidence that in my hard RMD symptom will help.

The problem is in da BRAIN - that 4 shure.
I think that we have defective pineal gland.
Some of us more, some less.....
Helpful - 0
Avatar universal
I am 52 and I have been rocking myself to sleep as long as I can remember about age 5. I rock my whole body from side to side. If I am worrying about anything I tend to rock faster and wake up looking like I have been dragged through a bush backward. I am able to control it at times only tend to suffer with the problem when I sleep alone that's my assessment over the years. Neither of my girls suffer with the problem. On a good note think it's helped me to keep the weight of a none stop work out.
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Avatar universal
Wow, didn't realize so many others had this.  I'm 48, and I rocked my head side to side in bed to get to sleep, preferably with radio on, until it tapered off in college.  I would only do it when my roommates were out for the night.  After college it picked up again for a couple years since I had my own apartment, but I stopped immediately whenever I had a girlfriend over and, eventually, live in girlfriends, due to embarrassment if anyone ever found out (I figured I was the only one in the world who did it).

In my early childhood, I used to bang my head back and forth in the car and on chairs while watching television.  Parents were not happy about this and often tried to correct me as I reached about 7 or 8. After that, I quit on my own because it was too embarrassing to do it in public.

I had a normal childhood, no mental or physical issues to speak of.  Sometimes I wondered if I had a very low level of autism or something, or just an obsessive compulsive thing going on.  It was very soothing and definitely helped me get to sleep when I was younger; the thought of not doing it to get to sleep seemed incomprehensible to me and I did have some anxiety when I went to college as I wondered to myself, how in the world am I going to quit cold turkey because there was no way I wanted anyone to know.
Helpful - 0
Avatar universal
My husband of 15 years also bangs his head violently.  Needless to say, we have never shared a room.  I am a person that needs sleep.
We have a daughter that does the same thing.  But her rocking affects her capability to function during school and has a very negative affect on her academic achievement.
Has your husband sought a second opinion?
Helpful - 0
Avatar universal
Anyone who struggles with body rocking, rhythmic leg movements, head movements, etc. ...I've had it my whole life. I just made a video about the treatment that I have crafted for it:

https://www.youtube.com/watch?v=l4Wkie62R04
Helpful - 0
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