I was wondering how your son is doing. I happen to be a Chiropractor and a friend of mine, whom I have known since I was in high school, contacted me 2 days ago. He experienced an on the job injury, where he was trying to use the pull start of a motor to try to get it to start. The motor was a 30 h.p. engine and required a pretty strong guy to get it to start. While giving an intense pull, the motor backfired, releasing the tension on the pull cord. He subsequently injured himself and immediately felt a heat in his arm and neck which has since caused a whole myriad of problems...one of which I believe is a traumatic induced Syrinx.
He came into my office for care and I did try to treat him, but I couldn't apply any pressure to any parts of his spine which (under normal conditions) I palpated as to have a problem and to try to adjust him. I normally use a hand held (percussive) massager on the patients back (to the muscles of the spine, shoulder, lower back, etc.) prior to the adjustments. This way, it relaxes the patient ad I can also feel whether or not the tissues are absorbing or transferring the vibration.
When I got to certain parts of his back, he not only said it hurt, the pain was almost completely unbearable for him.
I was hoping you could possibly post something about how your son is doing, where you went, who you saw or what sort of treatment they did for your son. I would really like to help my friend, but I don't think his case is something which I can do much for. I certainly don't want to make him worse! ANY sort of help would be greatly appreciated.
Yes, I figured they are the experts who have the most experience dealing with this. I have done so much research that I feel well informed when we go the the neurologist appointment. Thank you and I will keep updating.
Glad u sent ur info to the Chiari Institute....I went there and was well pleased with my Dr and my surgical outcome....no regrets they know just how to help us....Good luck and do keep us posted on what u find out.
Hi. Thanks for your response and suggestion. After lots of research, I have found a neurosurgeon in our area who has trained under the main neurosurgeon in the state of Florida. We have an appointment. My son's curve since his 3 chiropractic adjustments Nov and Dec increased from 37 degrees to 55 degrees in a couple of months. The Chiropractor took an xray, which he compared with the one we brought in from 2010 where my son's curve was 20 degrees. The chiropractor compared the 2 xrays and said there was no change in the 3 year period so he went ahead with the adjustments. We took the Chiropractor's xray luckily. When we went to the ortho doctor in February he measured that xray and said the cobb curve actually had changed and it was 37 degees. The Ortho doctor took and xray and the curve was now 55. From what I've read, a syrinx can be cause by trauma and the manipulaion to the thoracic area was extremely painful. When we go to the neurosurgeon, he should be able to tell if there is recent trauma. I don't know if it possible for a curve to increase 18 degrees in two months without trauma.
Thank you for your kind wishes. Wish you luck also in finding an experienced doctor. We have also sent a copy of the MRI to the Chari Institute in Great Neck, NY for their input.
I would call your insurance to see which neurosurgeons they cover first. Then research those doctors. We are having the same problem in ohio. But with only 8.4 diagnoses per 100,000 people (if I remember correctly) I don't think we will be likely to find more specialists. Also, I have learned that having a syrinx is called syringomyelia. I believe you said before that they already ruled out chiari, and from what I have researched, the scoliosis could have actually caused the syrinx. Most times they do not operate unless it is causing extreme symptoms but it is typically at the level of the cause of the syrinx. If scoliosis is indeed the culprit, there may be very little they can do surgically beyond shunting to relieve the pressure which comes with it's own inherent risks.
I hope your son finds relief, and again I think my first step would be to call the insurance.
Hi,,with the syrinx and other issues ur DS has I would advise to avoid a Chiro until he gets more answers on his condition....as those of us with Chiari are told if the chiro is not familiar with all the conditions u have or some not yet seen, more damage can be done so avoid manual manipulations like this for now....