Aa
I'm beging for your help ASAP!!
My mother was diagnosed on 9-10 for Hashimoto's Encephalopathy. One day after many falls, she was having spasms & hallucinating so we took her to the hospital. she was becoming very forgetful, She would say AWFUL things to her loved ones, like the devil was taking over her body, neurologist took a Sp. tp. They also found a lump in her Thyroid glan but didn't think it was anything to worry about. (FYI-her mother had her thyroids taken out)She is also a diabetic has high Bld,Prs.& fiber myalga.
They thought she had Mad Cow Disease. her brain couldn't tell her how to swallow. Other test came back all normal. They gave her 500 mlg of steroids for 3 dys, nerves calmed dwn, they said based on the amount of stairoids that were given, she should be in a coma, sense she wasn't they knew she had HE. On day 3,she was eating and talking normal.
She is home & on 70mlg of prednisone & averages approx. 1.5 to 3 hrs. sleep a day.
She is being very demanding to us kids, needs things done NOW!, her mind is going 100 mls. an hr, she gets into drawers and closets and having to touch,remove,make piles everywhere in the house.wants others to rearange furniture & give away everything. She is always calling people all hrs. of the day.
We can't control her. I need to know how to handle this. It is tearing me up inside. It is not getting any better. She has neurological problems, very hyper, psychotic episodes, hullucinations, delusions and dementia like signs. She always was a perfectionist but this is too much.
I have 3 other siblings and we all take our turn helping Dad, but we don't know what else to do.I thought prednisone was the cure for HE. How do I deal with this? What should I do or say when she is demanding things that do not make sense? When we say "no", she goes CRAZY. Must have her way or else... She understands her brain is not right and at times she knows exactly what she is doing but delusional most of the time.
A DAUGHTER IN NEED...Columbus, Ohio
They thought she had Mad Cow Disease. her brain couldn't tell her how to swallow. Other test came back all normal. They gave her 500 mlg of steroids for 3 dys, nerves calmed dwn, they said based on the amount of stairoids that were given, she should be in a coma, sense she wasn't they knew she had HE. On day 3,she was eating and talking normal.
She is home & on 70mlg of prednisone & averages approx. 1.5 to 3 hrs. sleep a day.
She is being very demanding to us kids, needs things done NOW!, her mind is going 100 mls. an hr, she gets into drawers and closets and having to touch,remove,make piles everywhere in the house.wants others to rearange furniture & give away everything. She is always calling people all hrs. of the day.
We can't control her. I need to know how to handle this. It is tearing me up inside. It is not getting any better. She has neurological problems, very hyper, psychotic episodes, hullucinations, delusions and dementia like signs. She always was a perfectionist but this is too much.
I have 3 other siblings and we all take our turn helping Dad, but we don't know what else to do.I thought prednisone was the cure for HE. How do I deal with this? What should I do or say when she is demanding things that do not make sense? When we say "no", she goes CRAZY. Must have her way or else... She understands her brain is not right and at times she knows exactly what she is doing but delusional most of the time.
A DAUGHTER IN NEED...Columbus, Ohio
I sent you a message.
No doc here, but I can tell you...sounds like HPTH, hyperparathyroidism making your calcium too high...all symptoms you are reporting here sound just like high calcium. Parathyroid glands are located behind the thyroid, same area, all it regulates is calcium.
I was so sick for 12 years before I had to ASK them to check my PARA THYROID level...after 24 docs, specialists, dozens of negative scans and mri's and dozens of "SYNDROME BASED" diagnosises, like fibromyalgia, chronic fatigue, nueralgia, IBS, depression, PTSD, somatiform pain disorder, bipolar disorder... and I could go on...even Chronic Lyme infection.....and was treated for that, still I got sicker, until I ask for ONE blood test....takes two freaking hours for the result....PTH. parathyroid hormone level.
If calcium is high or even over 9.6 and PTH is also elevated over 55, there is only one diagnosis: HPTH Hyperparathyroidism.
Check it out at www.parathyroid.com all look at sections on Calcium and Vitamin D.
D will most likely always be low when calicum is high...this causes much pain, it is the bodies way of protecting itself from too much calcium absorbtion which can kill you, or make you wish you were dead from the symptoms. Depression is a biggie with this too, but I say who cant be depressed trying to live with all this going on every day....horrible.
Most likely, the high calcium is causing all the nerve symptoms, can cause sporadic episodes of low then high BP, which causes headaches, when it starts lowering, I have it everyday.
And tingling numbing sensations all over, as well as fatigue and bone pain...because it is robbing your bones of calcium to satisfy the over production of PTH, hormone....the regulator, of calcium.
Look up HYPERCALEMIA Symptoms on wrong diagnosis.com, then look at HPTH symptoms, do the symptom checker and read.
Keep a log of your daily symptoms, moods, foods, and bowel activity, also keep a waking temperature log to show to your docs....
I find that when I eat a lot of calcium containing foods throughout the day, my pain is greatly reduced, because it is not having to pull the extra false requirement that PTH says I need; from my bones, so I eat lots of dairy now until I can have my surgery;;;;; but take care and get it removed quickly, will cause osteoporosis, and kidney failure with prolonged elevated calcium;. I now have osteopenia from it, one step below osteoporosis.
The parathyroid gland can have an adenoma, usually benign tumor causing it to malfunction, flooding the body with too much PTH....this will ruin your day, every day.....symptoms can be devestating, and yet, they rarely ever test for it, unless you ASK....what must I do...dam.
ASK for PTH, Calcium and Vit, D levels...
Lori
I was so sick for 12 years before I had to ASK them to check my PARA THYROID level...after 24 docs, specialists, dozens of negative scans and mri's and dozens of "SYNDROME BASED" diagnosises, like fibromyalgia, chronic fatigue, nueralgia, IBS, depression, PTSD, somatiform pain disorder, bipolar disorder... and I could go on...even Chronic Lyme infection.....and was treated for that, still I got sicker, until I ask for ONE blood test....takes two freaking hours for the result....PTH. parathyroid hormone level.
If calcium is high or even over 9.6 and PTH is also elevated over 55, there is only one diagnosis: HPTH Hyperparathyroidism.
Check it out at www.parathyroid.com all look at sections on Calcium and Vitamin D.
D will most likely always be low when calicum is high...this causes much pain, it is the bodies way of protecting itself from too much calcium absorbtion which can kill you, or make you wish you were dead from the symptoms. Depression is a biggie with this too, but I say who cant be depressed trying to live with all this going on every day....horrible.
Most likely, the high calcium is causing all the nerve symptoms, can cause sporadic episodes of low then high BP, which causes headaches, when it starts lowering, I have it everyday.
And tingling numbing sensations all over, as well as fatigue and bone pain...because it is robbing your bones of calcium to satisfy the over production of PTH, hormone....the regulator, of calcium.
Look up HYPERCALEMIA Symptoms on wrong diagnosis.com, then look at HPTH symptoms, do the symptom checker and read.
Keep a log of your daily symptoms, moods, foods, and bowel activity, also keep a waking temperature log to show to your docs....
I find that when I eat a lot of calcium containing foods throughout the day, my pain is greatly reduced, because it is not having to pull the extra false requirement that PTH says I need; from my bones, so I eat lots of dairy now until I can have my surgery;;;;; but take care and get it removed quickly, will cause osteoporosis, and kidney failure with prolonged elevated calcium;. I now have osteopenia from it, one step below osteoporosis.
The parathyroid gland can have an adenoma, usually benign tumor causing it to malfunction, flooding the body with too much PTH....this will ruin your day, every day.....symptoms can be devestating, and yet, they rarely ever test for it, unless you ASK....what must I do...dam.
ASK for PTH, Calcium and Vit, D levels...
Lori
Hi was diagnosed with Hashimoto's thyroiditis 2/10, I was initially hyperthyroidism took ptu for 3 weeks, then became hypothyroidism TSH 10, TPO 600, normal ft4,ft3, I took armour thyroid medication for 1 mth but could not tolerated because developed dizziness, facial numbness, headache, heaviness to left facial region. The 1st week of 12/10 i stopped armour thyroid and recently 1 week ago had TSH which was 1.56, normal ft4, ft4, tpo now is 200. I am off medication, but I still feel fatigue, dizzy, lacking emotion, ringing of left ear, headache and brain fog. In the last 5months i had brain mri with contrast neg, ENG studies neg, head ct neg, currently having EEG studies done to r/o seizure. My question to you with your past experience can a person with normal tsh level still continue to have Hashitmoto's thyroiditis symptoms. Thank You.....
PS...my condition and mental health improved DRAMACTICALLY when I detoxified myself from ALL the prescriptions, it made it much easier then to find my true diagnosis...because the medications were causing so many side effects that it muddled my true symptoms..
Yea, diagnosed with fibromyalgia, chronic fatigue, depression somatiform pain disorder...I could go on and on, with the diagnostic labels that have NO test to confirm or deny just so they could justify dolling me out more and more medications for symptoms that were ALL caused by my malfunctioning thyroid and parathyroid...it is incidious at the level of malpractice in my case....
Four mental ward lock ups, crying and begging for someone to help my body, not my head...the pain, the pain, they say...well, depression hurts...MY *** so does HIGH CALciuM when it pulls it out of your dam bones every day...NOW THAT FREAKIN HURTS....
Five unnecessary surgeries, 24 doctors and specialists over a 12 year peroid, and NONE Of them EVER checked my PTH LEVEL.....hundreds of thousands wasted on testing, meds, surgeries, and the loss of everything that was important to me before I FIGURED OUT MYSELF what was going on and ASK for the the DAM test myself, and guess what...BINGO...there it was.......after going back to school for anatomy, physiology and pathology....etc...for a year. Now, they can no longer give me the old snow job of here honey, take this, it will make you feel all better, and your mind can make your body hurt...BS. When you are sick you KNOW IT>
From a patient who has been through it ALL, my advice is: DETOX safely and slowly.....if she is on mental drugs....step one. find a GOOD endo step 2. Do your research and don't trust anyone with yours or your mothers health....it is your responsibility to keep the doctors in check I have found, they are no longer in the healing business, they are in it to keep you sick so they make more money off your suffering, and the more meds they give you, the more golfing trips the pharma companies send your doc on...bastards...
This has been my case, now I am so broke I cant pay attention....yea, thanks alot docs....hope you enjoyed spending all my BCBS money....now I have only my veteran benefits, and they suck, so I am having to fight to get the safest proceedure and to see a specialist....and I mean FIGHT> my next stop is my congressman.
Best wishes....the very thought of having to ever take prednesone again sends me into a panic....I become just like your mom....cussing everyone, cant find anything, pacing, no sleep, my mind is not being rational....like thinking of going primitive camping in the woods by myself...with no money just to spare my family the wrath I know is coming...thats how bad PRED is for me....
Lori
Yea, diagnosed with fibromyalgia, chronic fatigue, depression somatiform pain disorder...I could go on and on, with the diagnostic labels that have NO test to confirm or deny just so they could justify dolling me out more and more medications for symptoms that were ALL caused by my malfunctioning thyroid and parathyroid...it is incidious at the level of malpractice in my case....
Four mental ward lock ups, crying and begging for someone to help my body, not my head...the pain, the pain, they say...well, depression hurts...MY *** so does HIGH CALciuM when it pulls it out of your dam bones every day...NOW THAT FREAKIN HURTS....
Five unnecessary surgeries, 24 doctors and specialists over a 12 year peroid, and NONE Of them EVER checked my PTH LEVEL.....hundreds of thousands wasted on testing, meds, surgeries, and the loss of everything that was important to me before I FIGURED OUT MYSELF what was going on and ASK for the the DAM test myself, and guess what...BINGO...there it was.......after going back to school for anatomy, physiology and pathology....etc...for a year. Now, they can no longer give me the old snow job of here honey, take this, it will make you feel all better, and your mind can make your body hurt...BS. When you are sick you KNOW IT>
From a patient who has been through it ALL, my advice is: DETOX safely and slowly.....if she is on mental drugs....step one. find a GOOD endo step 2. Do your research and don't trust anyone with yours or your mothers health....it is your responsibility to keep the doctors in check I have found, they are no longer in the healing business, they are in it to keep you sick so they make more money off your suffering, and the more meds they give you, the more golfing trips the pharma companies send your doc on...bastards...
This has been my case, now I am so broke I cant pay attention....yea, thanks alot docs....hope you enjoyed spending all my BCBS money....now I have only my veteran benefits, and they suck, so I am having to fight to get the safest proceedure and to see a specialist....and I mean FIGHT> my next stop is my congressman.
Best wishes....the very thought of having to ever take prednesone again sends me into a panic....I become just like your mom....cussing everyone, cant find anything, pacing, no sleep, my mind is not being rational....like thinking of going primitive camping in the woods by myself...with no money just to spare my family the wrath I know is coming...thats how bad PRED is for me....
Lori
HI,
I have thyroid nodules and parathyroid adenoma HPTH...makes my calcium go too high, and all meds screw me up, if there is an adverse reaction possible, I have had including near death with lithium...all this before my diagnosis of HPTH...
They said I had bi polar disorder with psychosis and mania, when I had to go on prednesone...especially prednesone...makes me crazy, i mean, really crazy....even a shot of Haldol did not phase me in the ER...they were loading me up in the crazy wagon...I refused admission and went on benedryl straight away. The improvement was immediate with the benedryl. It was actually the bi polar drug that gave me a lung infection for 7 months, and nothing would heal it, so then came the prednesone.....
I was so crazy that I packed all my bags...toook all day to gather all my things to go live in the woods for 9 days until I finished the meds....but my family would not let me go thank god.
Thyroid and or parathyroid issues plus meds do not mix....body cant process it right.
Lori
I have thyroid nodules and parathyroid adenoma HPTH...makes my calcium go too high, and all meds screw me up, if there is an adverse reaction possible, I have had including near death with lithium...all this before my diagnosis of HPTH...
They said I had bi polar disorder with psychosis and mania, when I had to go on prednesone...especially prednesone...makes me crazy, i mean, really crazy....even a shot of Haldol did not phase me in the ER...they were loading me up in the crazy wagon...I refused admission and went on benedryl straight away. The improvement was immediate with the benedryl. It was actually the bi polar drug that gave me a lung infection for 7 months, and nothing would heal it, so then came the prednesone.....
I was so crazy that I packed all my bags...toook all day to gather all my things to go live in the woods for 9 days until I finished the meds....but my family would not let me go thank god.
Thyroid and or parathyroid issues plus meds do not mix....body cant process it right.
Lori
MEDICAL PROFESSIONAL
HE is a contraversial diagnosis.
She appears to have had steroid responsive encephalopathy now with possible steroid influenced psychosis vs exacerbation of underlying encephalopathy. Would work with neurologist to see if other meds may be helpful.
She appears to have had steroid responsive encephalopathy now with possible steroid influenced psychosis vs exacerbation of underlying encephalopathy. Would work with neurologist to see if other meds may be helpful.
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