Aa
Aa
A
A
A
Close
665587 tn?1265946924

2 surgeries within a month and papillary cancer

I am a newbie here and I really appreciate any input you have!! I am a 54 yr old woman (don't know if that matters) and so far my thyroid blood work has been okay...even after the subtotal.
As you read my progression you will see I have a subtotal thyroidectomy on 10/21/08 and am scheduled to have the rest taken out on 11/18/08 and I am kinda overwelmed.

I have so many questions, but I can't hold a thought to save my life. I am scheduled for a pre-op soon and am trying to get a list of questions for the doctor. It is a shame that we have to be so pro-active (is that the word I want?) in our own health care.
Any suggestions of things I need to do??

This is the progression of my thyroid issues so far:
10/21/08 Right subtotal thyroidectomy with recurrent nerve dissection and Stryker drain placed and secured. Frozen section. (I think they took out 1 parathyroid also) Found possible Papillary Carcinoma. ..small tumor sent to Pittsburgh for testing (could take 2 weeks). Surgery took longer, benign tumor ok. Left side looks ok. Normally when the find a larger papillary tumor, they take out the whole thyroid; he said it is so small that it may not be a problem…need biopsy report before determining next step. Said not to worry, if there is cancerous cells it is the most non-aggressive, may need a small dose of radiation. Will take tube out at 7am and get ready to discharge. Things didn’t go so well this time, nurse missed vein and hit a nerve or something….hurt like hell. Stryker drain came dislodged in ICU…when Renee removed it, stuff (blood?) went all over…down back and down front.
When I got up to go to bathroom, I felt something was wrong…it hurt, whereas it didn’t before getting up.  Told nurse, but she insisted that it was the bandaging, and said not to worry about it..

10/28/08: physician assistant –Post-op. Removed staples (10) and said no restrictions.
I went home and vacuumed and pounded nails---TOO Much!!! Incision opened in middle. (Doctors don’t understand that when they tell me ‘no restrictions’ that I take them literally !) OOPS.

10/30/08: Coughing jags. Incision opened more and yellowish stuff coming out. Cleaned and put steri-strips on, continued oozing. Pic of incision 2 weeks old.


11/03/08: ERMC for thyroid hormone blood work. Incision still oozing Renee wants to see it. Went to office and she said my body was rejecting the inside stitches. Gave injection of anti-biotics and a RX for another. When getting it refilled pharmacist said it would inter with Cymbalta and needed another kind. Received Amoxicillin.

11/07/08: Renee called and said that the biopsy showed that I have Papillary Thyroid Carcinoma and will need to have the rest of my thyroid removed. Scheduled for 11/18.
4 Responses
Sort by: Helpful Oldest Newest
274122 tn?1226453886
So sorry this is happening to u, I also got an infection after my surgery, going in they thought it was cancer, but it is Reidel's Thyroiditis.  I was kinda wishing it was the other, at least that can be treated.
You should be fine, it is the most treatable Carcinoma.  Stay positive, stay strong, and keep us updated.

Crazi~



  


  



Helpful - 0
665587 tn?1265946924
So far these are my question for the pre-op
1. bad experiences: drain dislodged, body rejecting stitches--what will be done to address these.
2. How big is the cancerous tumor?
3. Will you examine the lymph nodes?

Any other suggestions?
Helpful - 0
168348 tn?1379357075
HI .. I had stitch abscesses too .. they can try different type of internal sutures maybe ??  I am so sorry you are going thru this.  There are protocols in place with the Endo Assoc, etc. which lead to whether they go back in for a TT.  Were they tiny, encapsulated, vascular, more than one?  These are ?'s to ask I think.

My orig two nodules were benign and two micro's found incidental with no spread to lymph nodes and fully encapsulated so we chose to keep in the other side.

WELCOME to this great community .. many here have what you have, too and we are here for you!!!

C~
partial 1/07
micro's papillary
intact 4.0mm nodule still on other side watched ev. 6mos and is stable
Helpful - 0
665587 tn?1265946924
Your questions "were they tiny encapsulated vascular" are greek to me.
I haven't actually seen the pathology reports yet, I am just assuming that I don't have an option as far as the TT goes. It is what my doctor recommends...and doctors are always right aren't they??? ;)
Can you point me in the right directions to see what all this  means.

My brain is spinning...maybe I should just take it a day at a time and forget about asking questions and just let the doctors do their thing (which will be difficult for me cause I always want to be informed)
Helpful - 0
Have an Answer?

You are reading content posted in the Thyroid Disorders Community

Top Thyroid Answerers
649848 tn?1534633700
FL
Avatar universal
MI
1756321 tn?1547095325
Queensland, Australia
Learn About Top Answerers
Didn't find the answer you were looking for?
Ask a question
Popular Resources
We tapped the CDC for information on what you need to know about radiation exposure
Endocrinologist Mark Lupo, MD, answers 10 questions about thyroid disorders and how to treat them
Herpes sores blister, then burst, scab and heal.
Herpes spreads by oral, vaginal and anal sex.
STIs are the most common cause of genital sores.
Condoms are the most effective way to prevent HIV and STDs.