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1139187 tn?1355706647

Can you describe your symptoms with hashimotos?

One of the main things my friends always ask me is how do I feel?   I try to use words to describe how I feel with this illness.   Words can not describe regardless of how I hard I try.

Can you?
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Avatar universal
You'll adjust.

Your FT3 looks fairly good, but your FT4 is pretty dismal.  Are those labs current or from before you started ont he 50 mcg Tirosint?  I interpreted them as before...you have to get these guys to test FT3 and FT4 every time.  
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1139187 tn?1355706647
Great idea!

May I ask a question,  at some point will my body just get used to all this wackiness and adjust?

Also,  my frees didn't seem that bad at 20.1?
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Avatar universal
Correct, you are still feeling the effects of the 75 mcg. 13 days is right where I'd expect you to feel it...10 days to 2 weeks.

I know Tirosint doesn't have as many incremental dosages as levo, but when you are ready to increase again, you might ask your doctor about adding 13 to your 50, rather than going directly to 75...unless there's another interim dose available in Tirosint.

When I was overmedicated, my endo suggested discontinuing thyroid meds for 3 days, then resuming at my previous dosedose...you might ask your doctor about that approach.  It got me back to "normal" pretty fast.
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1139187 tn?1355706647
Here was my progress

NO THYROID SUPPLEMENT (felt horrible)

tsh 20.1
t4 free  0.9    0.8-1.8
t3 free 3.4    2.3-4.2

So then i did .50 for 34 days.  I went and got retested and only had tsh.  
TSH 5.8

So I bumped to .75 for 13 days.  After about 5 of them, felt progressively worse with the ear ringing, hot all the time etc.

So yesterday i backed down to .50 and this is where I think I will stay for a while.  

I am suppose to go see my other endo next week and am going to request a full panel, sonogram etc.

today was horrible, so in theory i am probably feeling the effects of the .75 despite being on .50 for 2 days, correct?

bruce


Then I went and got checked but they only did tsh this time.
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Avatar universal
They really need to understand that FT3 and FT4 are more important to test than TSH.  TSH causes no symptoms.  It is only an indicator of the levels of mainly FT4, and somewhat of FT3.  Plus it is affected by so many variables that statistically it correlates poorly with FT3 and FT4, and even worse with symptoms.  The test that correlates best with symptoms is FT3, so don't let them get away with that.  Insist on being tested for FT3 and FT4.  

That increase in your meds may not sound like very much, only 25 mcg, but think of it as a 50% increase, and you are very sensitive to meds.  

How long after you made the change was it before you noticed those bad reactions and reduced back to .50?
Helpful - 0
1139187 tn?1355706647
Ok now I am very alarmed.

I was on .50 tirosint for a month.  Didnt feel any better but really didnt feel any worse.  Then I got my tsh checked and it came back at 6 so they increased me to .75.  I went totally hyper.  Diareah, shaky, ears ringing off the hook, disoriented, more diareah,  and misery.

So I went to see my other endo (mr. harvard grad) and he thinks that i should of stayed at .50 for a little bit more as he feels it was moving the dial but I didnt not give it enough time.  So he backed me back down to .50 where ive been for two days.

Whats bizarre is that i feel worse than ive ever felt ever.  I feel like i have an electric current going through my head, im shaky like crazy, again very hard to think, very testy, caffienated feeling all the time.

I thought maybe this was me going hyper and hoping that it would just go away.  OR maybe ill feel this way for a week or so and eventually even out.

I felt much better not on anything at all, but we all know that is not an option.

any advice?

I dont have free labs on my last test.  they wanted to get tsh down a little and then they would re-test my frees.

bruce
Helpful - 0
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