I wasn't sure who else to ask, so I thought maybe the internet could help me. I'm a 27 year old female suffering from chronic pain and fatigue following a total thyroidectomy in 2011 for stage 1 papillary thyroid cancer.
I've seen a lot of doctors for this problem, including endocrinologists, rheumatologists, neurologists, psychiatrists, integrative medicine doctors, osteopaths, physical therapists and chiropractors. None of them have ever really had an answer for me. All I know for sure is that I never had these problems before my thyroid was removed.
My blood tests are immaculate--I've checked my vitamin levels, DHEA, cortisol, dihydrotestosterone, and basic metabolic panels, in addition to every thyroid test imaginable, including free and total T3 and T4, reverse T3, thyroglobulin, and TSH. I’ve tested negative for lupus, hepatitis, lime disease, Epstein-Barr, and multiple forms of arthritis.
I switched to nature-throid (desiccated pig thyroid) about 2 years ago because I thought it could help me. To be honest, it hasn’t made me feel any better but I have no intention to switch back to Synthroid. I take 3 grams daily. I’ve taken cytomel before but it made no difference.
I’m insensitive to most of the medications I’ve tried—antidepressants, muscle relaxants, nervous system meds, rheumatological meds, sedatives and medicinal marijuana.
Here’s a list of my most recent thyroid tests:
Free T3: 360 pg/dL
Total T3: 144 ng/dL
Reverse T3: 15 ng/dL
Free T4: 0.8 ng/dL
Total T4: 7.8 ug/dL
TSH: 0.01 uIU/ML
Every now and then, my doctors have raised and lowered my thyroid meds to see if it could alleviate my symptoms, but my symptoms have never changed. I’ve been tired and in pain for such a long time now; I can barely work and I don’t have much of a life.
Any advice would be greatly appreciated.