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988694 tn?1332359479

Good numbers, still with symptoms

I have been on NT, and in the same dose, for the last two months. At six weeks I had some testing done:

TSH: 00.0
FT3: 399  range 240-420
FT4: 1.02 range 0.60-1.6

This is the first time that my numbers are looking more or less "normal"
I thought I would feel better once in the same dose for a longer period of time, however I started to feel (after a month) like I was not taking anything at all.

My hair started to fall out like in the beginning, I am oficially depressed,headackes and ear pain in one side of my head, anxius, insomia, feeling cold and all the sympotoms I had before taking anything.

The only good thing: My periods are regular and my skin is slightly softer.

I do not know what to make of all this.
I tried to make an appoinment with my doctor  and get tested again, but he is booked until three more weeks.

Do I need more medicine? should I wait more to finally start to see the improvements? Do I have something else?
I have been tested for antibodies and it's negative.

Do not know what to think or what to do.

I can not take synthetics meds (ej.synthroid).

Any thoughts about why I am not feeling any better?

6 Responses
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Avatar universal
Hashis or not, people who have struggled with hypothyroidism commonly will have adrenal issues. The 24 hour  saliva test is the only reliable test. We have an adrenal community here on MH. They can also recommend a good protocol or perhaps good doctors who can test you properly. I had to go to my chiropractor because my endo ran the blood cortisol test and said nothing was wrong. My chiro ran the 24 hour saliva and we found out I'm in the final stages of adrenal fatigue. Low adrenals can inhibit the absorption of calcium and that can cause hair loss. Here's a site on adrenal fatigue.

http://www.adrenalfatigue.org/

Also, it wouldn't hurt to get a repeat on the TPOab and TGab antibody tests. Hopefully, your doctor did give you both tests. Occasionally, we Hashis get false negatives, so if you are hypothyroid, and since Hashi causes 90 percent of hypothyroidism in developed countries, you should know the origin of your hypothyroidism.

I cannot emphasize the importance of vitamin D. Because of my thyroid disease, my doc wants my D over 80. Also, lots of B12 and C is good for the adrenals.

:) Tamra
Helpful - 0
988694 tn?1332359479

I do not know much about reverse T3. My FT4 does not go up more because in order to do that I have to increase my dose/medicine which has T4 and T3. If I increase then my FT3 goes to the sky. I can not take T4 only medicine to balance because I had a rection to it.

Is the reverse the one when you can not convert  T4 into T3?, if so how does that apply according to my numbers?

I do not have hashi's according to my doctor. I am not sure if he will agree to do the saliva test for the adrenals.

For  vitamins, I know my B12 is in range,in the lower side of it. My ferritin was also low normal and I took some pills for it but I quit after I started thyroid treatment a year ago.
I have been never tested for vitamin D or C. I am going to ask my doctor about it.

Thanks!
Helpful - 0
Avatar universal
My doc doesn't put much stock in TSH, either.

Here are some things to consider:
1. Your FT4 is still low. Wonder what your reverse T3 numbers are?

2. Your symptoms, even the hair loss, can also be adrenal fatigue. Hypothyroids/Hashis commonly have adrenal fatigue. VERY commonly! You must have the 24 hour saliva test to determine your cortisol levels. The other tests are a waste of time.

3. Vitamins! If you have Hashimoto's, then my doc advises levels over 80, not the outdated 35. Get those vitamin levels, especially D up, up, up. Low vitamin levels can really make us feel like doo doo and many of us have these problems with vitamin absorption. Really keep an  eye on D, B12, iron, C, and magnesium.

:) Tamra
Helpful - 0
988694 tn?1332359479
Thanks, I guess I will have to get tested again and see my doctor ( and wait).

When my thyroid in above 1.5 my frees are  either below normal or at the bottom of the range.

my doctor is not  paying  too much atention to my TSH. He wanted to increase my frees and see how I was feeling.

Now, I do not know what is next since I feel like in the beggining.
Helpful - 0
Avatar universal
Maybe your TSH isnt at a good level for you?
Its basically suppressed and non existant.....
'Normal' for others may not be normal for you.

What is normal for everyone else isnt normal for me.
I am at my best when my TSH is 2.3 - 2.5 yet others feel hypo with a TSH like that.

Personally I would NOT increase...wait the 3 weeks and see the Doc.
Helpful - 0
Avatar universal
just some food for thought here.   i had a similar experience my labs were good  frees in the med to upper   actually my ft3 was high and ft4 mid range and my tsh .01.  i didn t feel good had symptoms still.  so i cut it all way down and my frees are really low and my tsh is high and felt better.  now i am feeling a little bad and think i need more-   what can i say?  its a crazy dance i guess.  no answer here just my experience.   why did i feel better when my frees were so low? GOD HELP US ALL...
Helpful - 0
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