Hashi neck, spine, shoulder, joint pain EXPLAINED!

[TamraW]

If you are a Hashi, or suspect that you are a Hashi, then read this article. It explains why we have spine, shoulder, joint pain....

Mine sometimes occurs in the shoulder, back of neck (top of spine), chest, knees, fingers, toes, ankles...

http://www.thyroidtalk.com/Hashimotosjoint.html

:) Tamra

[flyingfool]

Mdm3,

You sound like you have been through the ringer for a LONG time.  There are ways to get medication but it would involve self-medicating. Which is really an absolute last resort and something many people won't do and I don't blame them.  

PM if you want some more information to consider....or not.  completely up to you.

[gimel]

Tamara has not been active here for a very long time, so doubtful that you will get a response there.  If you will tell us your location, perhaps some other member can provide the name of a doctor (s)  that has been recommended by other thyroid patients.

[Norty1]

I would love a recommendation for a doctor in the Los Angeles area if anyone has one.  My doctor is willing to give whatever meds I want but doesn’t seem that interested in helping me solve it.  I feel like I am bugging her.

[Mdm3]

Tamra. I was wondering about your endo because everyone over past 25 years that I have found want nothing to do with adding T3 and after feeling horrible for the full 25 years, I feel like I just need to find the right doctor. Would you be able to give me the name of your doctor and where and maybe they could help refer me to someone that could better help me?

[gimel]

Please post your last few sets of thyroid related test results and reference ranges shown on the lab report.   Have you had an untrasound test for your thyroid gland?  

[EmiliRoy]

Hello

[gimel]

Hello.  Is there something we can help you with?

[judit9]

Hi! I was diagnosed with Hashimoto about 3 years ago but I told my endocrinologist that my symptoms were not Hashimoto, they are 95% Graves.(and my Dad had Graves). I have no bulging eyes but they are dry and irritated. I also  lost 30 pounds in less than 6 months without trying and was eating a ton of food.The diagnosis came 1 year after I was diagnosed with type 1 diabetes and wound up in the ICU for 2 weeks. This pretty much happened over night. I was 59 at the time. I now shoot insulin twice a day but I won't take the levothyroxine because the it makes me feel worse. I've been diagnosed with everything from lupus to fibromyalgia to hashi to arthritis. Different doctor,different diagnosis. So frustrating. No one ever checked my vitamin D level which considering the fact that I'm highly agoraphobic should be a no brainer. I just started taking 4000IU of D3 a day in hopes it will help me. I eat a Nutritarian diet plus salmon twice a week. Just went gluten free. I had to figure this all out for myself since the doctors have the"here's another pill " cookbook mentality of practicing medicine. My final red flag went up when my doctor congratulated me on my weight loss. ARE YOU KIDDING ME?  I feel horrible and hope that someone has some advice for me since I live alone and don't really have anyone to help me research because sometimes I just can't.

[mesarose]

The book that helped me the most is "Why do I Still have Thyroid Symptoms" when my lab tests are normal, by Datis Kharrazian.  I have been on Naturethroid and I totally  avoid gluten, dairy, eggs, soy, and I limit sugar as much as possible.  I also do Theresa Tapp's 15 minute workout plus daily.

[LazyMoose]

"It feels like I've gotten shots in those areas because the pain is only in a small patch."

-Well then you have trigger points, very small tight knots. Also called myofascial release, if you ever want to try it. Its not a regular massage at all.

I have saved so much money by learning the technique on my own using my thumbs or a tennis or golf ball on the floor. Very hard to relive them in the calves, takes time.

We all hear good things about acupuncture, but I never tried it since its so expensive. Someday maybe.

[TippieDee]

The best way to get those TrP's in the calves is to lie on floor with knees bent. Put painful calf on other knee, and move it around with pressure. You are sure to find those points. Then, try to just use steady pressure, at a level you can stand — you don't have to be screaming in pain — for about 90 seconds at a time. You might find many points. This is known to be good for sciatica and many other problems, so your calves might not even hurt! Good luck!

[TamraW]

Only within the past few days I've been experiencing these muscle pains in certain areas - my buttocks, thighs and arms. It feels like I've gotten shots in those areas because the pain is only in a small patch.

I have no idea why I'm getting these pains now. Before, it was mostly centralized to the calf muscles.

In one week, I go for blood tests and then the doc will add Cytomel if needed. I hope that will help. I have also considered massage or acupuncture.

:) Tamra

[LazyMoose]

That was the first article I've seen that was directed toward thyroid induced muscle pain for all to see.Good post. What it really boils down to is lack of blood circulation and toxic build up in the muscle tissue for hypos.

I've always babbled about trigger point release, I'm sure some read and laughed at it. It differs from a 'feel good' massage which feels good initially but does not last. But how it works is by manually pushing the toxins out of knotted muscle tissue, then it restarts the natural blood flow cycle that instantly rejuvenates a tight , toxicified muscle and the healing process can now resume as it should have but could not. Another way to look at it: knotted and tight muscle from lack of blood flow being hypo essentially starves the muscle. I only do this occasionally now, it was several times a day for three months.

Near crippling muscle pain was what made me learn more about my thyroid as my GP was not even aware that Hoshi's contributed to body pain. I hurt 15 years until I couldn't take it anymore (5 were really bad)!

[TamraW]

Yes, I do get the muscle pains, but not as bad as some members of this forum. That's why I posted the article.

I am not on T3. I just switched to a GOOD endo, who will test my labs in two weeks to determine if I need T3. My new endo is a strong advocate of T3 treatment.

:) Tamra

[LazyMoose]

I had bad muscle pain that got worse while on only T4 for ten years. The addition of T3 really helped and relieving knots using trigger point therapy speeded my recovery. 90% of pain is gone now.

Yes we forget that muscles are indeed organs also and they suffer recovery malfunction when we are hypo , or in my case still felt hypo after 10 years on T4.

So you still have a lot of muscle pain, are you on T4 only?