Hashimoto and Chronic Urticaria (hives)

[kdcdcd2]

In 1994 I was diagnosed with Hashimotos Thyroidits...then I was told that the Hashimotos turned into Hypothyroid...now for the last 9 months I have been diagnosed with Chronic Urticaria or hives. I will wake up with hives head to toe and am miserable but then by midafternoon the hives go away and come back around 8pm. I have seen a Dermatologist who says I need to accept the fact that I will not know what is causing the hives and to treat the hives (allegra and zantac) I have seen the Allergist who wants to check for an autoimmune disease which I don't understand because Hashimotos is an autoimmune disease or problem I thought. My thyroid doctor says there is no link between the thyroid and the hives and has taken a leave of abscence from his practice. I am now very frustrated and feel like I have to settle with no answers. Does anyone else have these issues?? or does anyone have any thoughts about this??

[Heatsol]

There is a direct link. I have the same condition and I just had an attack as well.  I used to get hives on a daily basis.  You should be put on Synthroid.  My hives have rarely attacked since.  If you are not on the proper amount of Synthroid, you need to see a doctor who will up your dose to the appropriate amount to control your symptoms.  By the way, most doctors know very little about Hashimotos.  If you do not find the answer you need, you need to seek the advice of a different doctor.  You may want to find a doctor that combines both traditional medicine with a slight Holistic approach.

[2theritz]

What are thyroid supplements?
I got cold uticaria when I was 30 yrs old.
Then in 2008 learned I had hashi.
Was put on Armour  30 mg
2 yrs ago noticed hair loss, brittle nails

just started Levothyroxine  .05 MG
hopeing for improvement......this problem is getting scary !!

will stay with regular MD who is new to me since moving to Fla, but feel soon I may need to see a thyroid doctor.

[hashifriend]

I too have been diagnosed with hashimotos and i am not on thyroid meds as of yet, thankfully. I am seeing a naturalpathic dr, out of pocket and my endocrine with insurance, the treatment is sooo different. I have become semi vegan, no dairy, but i eat fish and eggs occasionally. I am on thyroid supplements and have seen good results in my lab results. I haven't had hives yet and i am so sorry to hear that so many of you are. If you can try and see a naturalpathic dr, they treat the immune system, which is causing the damage, whereas my endocrine is just waiting to see when i need thyroid supplements.

[Rachelle4077]

My daughter has been suffering for almost 3 years with unexplained medical problems, We have been told she has Chronic Autoimmune Urticaria, She was placed on Synthroid 25mg along with antihistamines that do nothing for her. We experienced our first case of Angioedmea of the head and neck last week which landed us in the ER to bring the swelling down and open her airway. She has been checked for Celiacs, biopsy was neg. We have seen hundred of doctors and many ER visits in the past with unexplained symptoms, Chronic cough. Neck swelling along with lower back pain. She has times where hands and feet swell and cause numbness and tingling. chronic hives that last for weeks on end, fatigue but not able to sleep along with weight gain, heart races she has also experienced a time last year when she wasn't able to speak. Like a veggie state. When asked after if she could hear us talking to her, she replied that she knew what was going on, But she felt like her body was out of control. I can go on and on. She does have times when her body goes into remission and she can resume to normal teenage life. School, Lacrosse, Band etc.. But it comes back.


Our appt with Endo and Allergist is on the 17th, I'm hoping they can do something for her. As a parent watching your child suffer its just agony.

[Christy9296]

Your case sounds like my daughter's.  She is now 16, but has been battling these same problems for years; all with the 5 endocrinologists we've seen not being able to figure it all out.  She was diagnosed w/ hypothyroidism when she was 8 and no one has ever been able to keep her TSH levels regulated.  It's almost as if her body figures out the new medicine and/or dosage w/in 12 weeks of changing it.  She has had hair loss, very dry skin, some tremors, severe angioedema and hives; other times, she has what seems like hyperthyroidism w/ weight loss, rapid heart beat, etc.  No one seems to be able to figure it out.  We finally got on the Mayo Clinic waiting list; now upgraded to the scheduling list; say we should be going late this month or early next month.  I pray someone can figure this all out for her.  She's a jr in high school w/ plans on going onto college, but the high school doesn't want her there when she's swelled....liability issues.  We fought constant angioedema for a week back in february and now again this past week.  Arrrrgggghhhh!

[Geliza]

Google LDN, I am at present trying it out so cannot vouch that it will work but so far it seems to be doing some good to my immune system, I have had to reduce my Hashi meds slightly after only 2 weeks of treatment.

I'm female 64, was diagnosed with Hashi, (and also Graves), three years ago, and I went gluten free 4 months ago, which really reduced aches and pains and stomach problems. Then about a month ago I started with terrible itchy dermatitis, patches that appeared and dissappeared which made me suspect that my  immune system was really going mad so I decided to try LDN as about the only thing that could maybe put my immune system back on track.  As with other posts on here, Doctors are mostly a waste of time, the vast majority know very little about all this and are not really interested in finding out.