Hey, I don’t know if you found a solution to your problem but I have been struck with the same problem suddenly never having smelled bad before in my life (I am 29 now, female). So I was doing my research, my thyroid is under control by levothyroxine, all the blood work is perfect, nobody could give me an answer. I’m really into nutrition so I’ve been researching the foods that can give a body odour and then I realized I was eating considerably more red meat than ever before, so I stopped like 2 weeks ago and - oh my god - these are the happiest days because I don’t stink!!!!!!!! Just a suggestion… if cutting out beef doesn’t work for you there’s always a possibility to get a food intolerance test to eliminate possible causes
When she is at school and notices she is sweating she uses Pacifica underarm deodorant wipes with no aluminum. They are 100% vegan as well. Be sure to make sure your underarms are completely dry before applying any deodorant as well. That’s very important. Do not wear your bra more than once, and be sure to neutralize any odors embedded in the fabric of your clothes. There are pre-treater sprays online just for your laundry.
Side note: we were equally as frustrated thinking she wasn’t washing well, but that wasn’t the case. We tried every deodorant and body wash available on the shelf. One that worked well for a while was called “Native”. She used the body wash and the deodorant.
Try deodorants that have no aluminum. That seems to work better for my daughter. Her doctor advised her that aluminum based products do not work with Hashimoto’s.. and yes, my daughter’s underarm odor is considerably worse under stress and during menstruation.
I have unpleasant body odor from not enough vitamin B12. But in your case it sounds to me like you have the genetic condition Trimethylaminuria (TMAU). TMAU has been described as smelling like rotting fish, rotting eggs, garbage or urine. Body odor can be worse during your period or under stress. Check out this youtube video: Trimethylaminuria (fish body odor) story on UK TV.
TSH of 9.46 is definitely too high, but TSH is a poor indicator actual thyroid status since it correlates poorly once we begin treatment of hypothyroidism. Your Free T4 of 0.88 is also too low. Free T4 is considered the storage hormone which isn't used directly by individual cells. It must be converted to Free T3, which is the active thyroid hormone, which is used nearly every cell in the body. If there isn't enough of the Free T4 converted to Free T3, one will continue to have hypo symptoms. Many doctors don't test for Free T3 unless specifically encouraged (i.e. we must often demand) to do so. I once had a doctor who insisted that Free T3 was tested for "research" purposes only... yeah, research on my body!! :-)
Your latest tests were in March of 2018 and you've been taking your current dose of medication since March of 2018. Was that dose prescribed in response to low thyroid hormones and/or hypo symptoms? Since you still have the same symptoms, apparently, the dosage change didn't do a whole lot?? Many of us need to add a source of T3 if T4 only medication such as Synthroid, Levothyroxine, etc isn't adequate. Sources of T3 include Cytomel, its generic Liothyronine, desiccated hormones (sourced from porcine), such as Armour Thyroid, NP, NatureThroid, etc.
Have you been tested for Vitamin B-12, Vitamin D and/or Ferritin? I'm guessing since you don't have insurance, you might not have been. Vitamins B-12 and D are necessary for the proper metabolism of thyroid hormones; iron is necessary for proper conversion of Free T4 to Free T3, plus it's necessary for adequate production of red blood cells (as is B-12). Red blood cells carry oxygen throughout the body, which gives us energy, etc.
Hypothyroidism definitely affects the skin, nails and hair as far as dryness, blemishes, etc. Other B Vitamins can be helpful with this, as can Omega 3 fatty acids, magnesium, etc. Some of these things may cause odor.
If the odor gets worse during the time of menstruation, I'd suggest that as something to investigate... hypothyroidism can affect menstruation as well, so that might another thing to address. Are your periods regular/normal? Have you had female hormones tested? The thyroid must work in conjunction with other endocrine systems in order for our bodies to work properly. These other systems include reproductive, adrenal, pancreatic (controls glucose metabolism and helps control weight), etc.
Are you, by any chance, diabetic? If so, is your diabetes under control?
So - my first recommendation is to find a doctor that will do complete testing... TSH, Free T4, Free T3 and get your thyroid properly adjusted. Since you don't have insurance, we can suggest web sites from which you can purchase the tests without a doctor's order (in most states in the U.S.) if you'd choose to do that. Once you have blood work in hand, many doctors are, then, willing to prescribe medication accordingly.
This isn't an issue I'm familiar with in regards to Hashimoto's, but we can dive into it and see if we can help you.
Can you describe the odor or give an idea where the odor might be coming from? For instance, does it resemble a sweaty odor, a vaginal odor, a urinary odor, etc?
I'm assuming you've discussed it with your doctor(s)... have they done any tests to try to find out what it might be? If so, what tests have they done and what were those results?
What are your current thyroid hormone results, with their reference ranges? Do you have any other symptoms of hypothyroidism or Hashimoto's? What's your current dose of thyroid medication and how long have you been on the current dose?