I am back - with still more confusion

[DMFischer]

I wrote here back in April that my doctor had told me that I had thyroid cancer after a uptake came back abnormal.  This would be my third bout with cancer and without a FNB I was not willing to just accept this.  Upon closer questioning with my physician he did assure me that without a FNB his words should have been that he strongly suspected cancer.  Either way, I was fighting a battle.  My energy was so low I spent most of my time curled up exhausted.  Muscle spasms that hit suddenly, and will disappear as suddenly. Constipation to the point of hospitalization once. My skin is so dry, bumpy and ichy I could rival sand paper!  I let the depression get a good grip, without actually realizing it, and pulled my head into my shell in a turtle like fashion and pretended it would all just go away.  I was put on the lowest dose given of synthroid, and that was it.  I didn't go for the FNB.  Denial is a huge seduction. For a short time the synthroid helped.  I got a small amount of engery boost, a bit less depression, but within a few months I began to get worse again.
I finally pulled my head out of the sand and dragged my terrified butt in for the FNB.  They went into three of the nodes, twice each one.  All on the left side.  The results were simply inconclusive.  They found Large cells present in one node and eliminated the reason for them being there, but for cancer and Papillary Thyroid Cancer was the one mentioned that they could not rule out as the reason for the Giant Cells.  The surgeon that ordered the biopsies signed off on the reports and did not call me back into his office to schedule anything further.  
I got worse, and was finally shipped off to another endocrinologist.  He found that I had a severe Vit D deficiency.
So now I am hanging in limbo.  Do I harass my surgeon?  Do I wait more?  Tonight my legs are swollen again.  I have a small spot I scratched at, the pesky rash, and now its leaking water.  Not puss, not the yellow clear fluid that sometimes comes with healing.  Water.  Crystal clear water that slowly drips down my leg.
I seriously need support and direction.  I am tired of crying.  I am tired of being tired.
Please.

[DMFischer]

Thank you for answering me.  Someone recently told me that they really do not understand everything that the thyroids do for us and what they effect.  When they told me that something was wrong with my thyroid i was elated.  I know that sound stupid, but after a lifetime of being told that the struggles I had were not my imagination, any sort of answer was better than the insanity I had been going through.  Thank you all for support.  I hope you know how much it means when your sitting out here alone.

[stella5349]

Simply put - inconclusive means "not sure"

I would not want to gamble on anything.

Go get a surgeon who is proactive and get this out. Or at least willing to help you.

Sound to me - this surgeon you have is shoving you under his rug.  

Fight back !

[utahmomma]

I can't answer any of the medical question about all that has been happening to you but does this surgeon you have been dealing with specialize in thyroids?  If not is there another surgeon you could speak to - perhaps an ENT?

If they can't rule out cancer, you need to get the thyroid out.  Thyroid cancer is what they call a "silent cancer" but it causes more physical problems than most doctors will acknowledge.

Please, I know you feel horrible and are depressed but please get another opinion.

Utahmomma
papillary carcinoma '03
recurrence and RAI '06
three sisters with papillary carcinoma
another sister with precancerous thyroid
daughter with precancerous thyroid