Aa
Just when things are looking up . . . wham!
So, "clean" scan on Friday is what the radiologist told me. There was some uptake in the salivary glands, a bit in the thyroid bed, some in the liver . . . all which he attributed to the radiation being removed from my system. Okay, I can buy that. So Friday and Saturday I was doing the whoopie dance.
This afternoon I finally got my thyroglobulin results back. Two weeks ago it was at .2 - today it is at 1.4!!!! That's a 700% climb in two weeks! So, in between appointments (yeah, I work 7 days a week) I looked up some research studies on increased Tg despite a negative I-131 scan. Not so great news. Sloan-Kettering and others had some great research which showed that either I need a complete hypohell/LID scan/treatment or a PET scan followed by RAI treatment. Either I have a recurrence that is iodine resistant or, because I wasn't on a LID, isn't as sensitive to the I-131 as it should be.
Grrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrr.
I hate cancer. Even the "good" cancer. Grrrrrrrrrrrrrrrrrrr
Going to have a long chat with the endo tomorrow when he calls with my results (which I already have).
Hope everyone else is having a better night.
Utah
This afternoon I finally got my thyroglobulin results back. Two weeks ago it was at .2 - today it is at 1.4!!!! That's a 700% climb in two weeks! So, in between appointments (yeah, I work 7 days a week) I looked up some research studies on increased Tg despite a negative I-131 scan. Not so great news. Sloan-Kettering and others had some great research which showed that either I need a complete hypohell/LID scan/treatment or a PET scan followed by RAI treatment. Either I have a recurrence that is iodine resistant or, because I wasn't on a LID, isn't as sensitive to the I-131 as it should be.
Grrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrr.
I hate cancer. Even the "good" cancer. Grrrrrrrrrrrrrrrrrrr
Going to have a long chat with the endo tomorrow when he calls with my results (which I already have).
Hope everyone else is having a better night.
Utah
Great news -
On to the next thing to tackle
It will all work out great .
Take care :)
On to the next thing to tackle
It will all work out great .
Take care :)
I guess going all crabby-cancer-patient-commando phone pestering finally paid off. Within an hour *both* my endo and my new Internist's nurses called me with schedules/orders for my PET scan. I took the one for Tuesday instead of Wednesday. I guess I could do it twice but that would only anger the insurance gods. :-)
Wahooooooo - I get a PET scan. You know, it's pretty sad when you get excited about medical testing. We are a strange lot, us thyroid cancer survivors, aren't we?! :-/
Wahooooooo - I get a PET scan. You know, it's pretty sad when you get excited about medical testing. We are a strange lot, us thyroid cancer survivors, aren't we?! :-/
I hope that they do the PET scan. Considering your family history and ALL of the knowledge you have being you I would think that they would just do it and not even ask.
I just hope and pray you can get to the bottom of this soon so that you don't have to go threw the aggravation of the if's and what's while feeling like do do. Anyhow, I hope you get your answers soon to all of this craziness. And I hope and pray that it's good news and not bad. (((((((BIG HUGS always))))))) Amy.
I just hope and pray you can get to the bottom of this soon so that you don't have to go threw the aggravation of the if's and what's while feeling like do do. Anyhow, I hope you get your answers soon to all of this craziness. And I hope and pray that it's good news and not bad. (((((((BIG HUGS always))))))) Amy.
i hope they get to the better of this **** for u must be a burden if u were in nz they have a high cure rate here but ive had church family with cervical cancer including breast canncer one lady at churchsaid after 1 lot of chemo her cancer came back more chemo
I'd do the Pet .... they say high risk . . . you say you want the best possible tests for this and/or any other type of cancer. Just cause they think it's the "good kind" .. well, don't get me started on that ...... C~
Thanks guys - MJ, my TgAB has always been "3" so it's not interfering with the Tg. From what I've read the Tg is more sensitive than the WBS (for those who don't have to worry about antibodies) and the PET scan can be more sensitive than the WBS too. Down side of the PET though is it can't differentiate exactly *what* type of cancer - just that it is cancer (which I'd like to know anyway since I have a huge family history of various types).
Yeah, if an ouija board, seance, or witch doctor could help; I'm about ready to go for it. :-)
Yeah, if an ouija board, seance, or witch doctor could help; I'm about ready to go for it. :-)
Hey, girl! Just wanted to let you know that I'm thinking of you. Refresh my memory...do you have Tg Ab's? I have them and was told the only way to tell for sure there is a thyca reoccurance in my situation is a WBS. With your family history I would press for the PET scan.
Sending you tons and tons of hugs,
MJ
Sending you tons and tons of hugs,
MJ
I second you. I just did a shout out not seeing this post.. Been thinkin of you,
C~
C~
I'm pushing for a PET scan. I'm anything but "typical" when it comes to papillary carcinoma so I'm asking my endo to toss out all the text books. My sister's last recurrence showed metastases into her breasts and liver and her Tg was only .4. My last recurrence, my Tg only climbed to .5. Whatever the form of papillary carcinoma we seem to share as a family it seems to be aggressive and not play by the rules the medical establishment has created for papillary carcinoma.
I know the Tg is more sensitive than the RAI but I also know that neither are perfect. That's why I'm pushing for the PET scan. After reading a bunch of research from some well-known oncology schools they use all three tests to check for recurrence.
Never ending fun.
Thanks all for the wonderful posts, notes, and PMs. you all rock!
Utah
I know the Tg is more sensitive than the RAI but I also know that neither are perfect. That's why I'm pushing for the PET scan. After reading a bunch of research from some well-known oncology schools they use all three tests to check for recurrence.
Never ending fun.
Thanks all for the wonderful posts, notes, and PMs. you all rock!
Utah
Oh man. I am so sorry. I can't wait until they find what is elevating that Tg of yours and zap it into eternity. BUT, Thyrogen raises your TSH and your Tg, so I don't think you can use those results yet. My Endo says that when your Tg rises with your TSH it can be an indication of the other antibodies (not TGab) that can artificially elevate your Tg. Just sayin'...PLUS, my girlfriend who has two big re-growths (she had TT and two rounds of RAI and is going in for second surgery in a week) on her vocal nerve's Tg is .02, so I'm not entirely sure it's the MOST reliable marker in ALL cases.
I mean rock the pub as in tear it apart and destroy it as you must be so so angry right now at all this crud .
C~
C~
Utah ...................you in the mood on your 5th anniv to rock the pub? Let us know ASAP after you talk with your endo ............. this stinks :(
C~
C~
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