Any thoughts or advice would be greatly appreciated!
T4 went up higher and I began having the stomach issues once again and diarrhea. I also have had some rapid heartbeat, up to 120 on occasion so am unable to stop the Propranolol entirely which I would like to do, so I can also stop the Eliquis. But until they are sure I am stable on synthroid and no risk of A-fib my cardiologists want me to take the Propanolol or wean off, but take it heart rate goes up. As long it still goes up they fear A-Fib and risk of stroke so are insistent I stay on it for now.
Thursday 4/25, night I woke up at 4 AM with extremely bad stomach pains, drenched in sweat and had diarrhea. I took immodium and went back to sleep. Woke up around 7 AM with it again, took my Synthroid and went back to sleep. Around 11 AM it began again and this time it was just bright red blood with clear mucous so I called my gastro and then called my cardiologists because they have me on Eliquis. They said go to ER to rule out a bleed from the Eliquis. ER did cat scan, labs, stool samples etc. but insisted I stay overnight to monitor. I saw the gastro the next day( 8 days ago), no more blood and he cleared me to go home and said it was colitis and IB most likely.
I was on a heart monitor the entire time and they saw no more A-Fib but did catch a couple periods of tachycardia. Not bad but once up to 128 just from walking a few feet to the bathroom. They gave me the propranolol and it went down.
They did run labs on Free T4 and TSH but not T3. Anyway…. the T4 is up since my labs and the TSH is down. T4 is now higher than it has ever been. They said to call my endocrinologist and let him know T4 was now 1.77 (0.76-1.46) HIGH.
I was released the next day and called the office and spoke with my endo on call Saturday and endo on call said skip Synthroid Sunday and then take 1/2 of 112 Synthroid on Monday and call my regular endo on Monday, which I did. He changed me from 112 to 100 Synthroid based on T4 up and TSH heading downward.. I am due for labs on May 6, tomorrow. Yesterday and today I am feeling worse…. that cold feeling I had before the Synthroid kicked in is returning, so is the tired, achy feeling, I am tempted to just start back on the 112 before he gets the new labs.
Below is T4 chart from 11/2016 to yesterday:
Chart of T4 since 2016. In January 2019 A-Fib began: REFERENCE RANGE FOR ALL IS (.076-1.46) ALL DONE AT HOSPITAL
11/23/2016- 1.25 (.076-1.46)
3/5/2017- 1.05 (.076-1.46)
11/20/2018- 1.38 (.076-1.46)
1/13/2019- 1.46 HIGH (.076-1.46)
2/4/2019- 1.57 HIGH (.076-1.46)
2/19/2019- 1.50 HIGH (.076-1.46)
3/2/2019- 1.51 HIGH (.076-1.46)
3/7/2019- 1.35 (ON PTU)PRIOR TO SURGERY ON 3-13-18 (.076-1.46)
THYROID REMOVED 3/13/2019
3/18/2019- T-4- 1.04 (5 DAYS AFTER SURGERY BEFORE SYNTHROID)
3/19/2019- BEGAN SYNTHROID
3/27-2019- T-4 1.35 (.076-1.46) -9 DAYS AFTER BEGAN SYNTHROID
LABS 4/9/19 @ Quest prior to first visit to endo since surgery:
TSH- 0.27(.40-4.50) LOW
T4 FREE- 1.8 (.08-1.8) ALMOST INTO HIGH RANGE
T3 FREE-2.4(2.3-4.2) NORMAL BUT ALMOST LOW
LABS 4/26/19- @ Hospital:
TSH-0.14 (0.36-3.74) LOW
T4 FREE-1.77 (0.76-1.46) HIGH