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OVERACTIVE THYROID SYMPTOMS

taking neomercazole 20mg a day - I am on weeks ten of this I am very anxious still and I wonder how long will this symptom last I also lost a lot of weight but each time I ask I am told ah that will come back or with anxiety I am told ah that will go but what I need to have an idea of is WHEN it just seems to be endless having overactive thyroid    
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Avatar universal
To be perfectly fair, many people DO just take a pill and everything is wonderful.  I was talking to my dental hygienist, who takes the same meds as I do, and telling her my sensitivity/side effects with meds, etc.  She just gave me a look and said, "It does ALL THAT to you?"   I got the distinct impression she thought I was out of my mind!  So, even some people with the same disease don't really understand.

I have to say that if you ARE one of the people who pops the pill and feels well, you probably don't need to hear all the things that COULD go wrong.  Some bridges are best crossed only when necessary.  We, here on the forum, are the exceptions to the rule.  I'm always concerned with frightening those just beginning their journey unnecessarily.  It's often difficult to know how much information is too much information and vice versa.

Best to you all...
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Avatar universal
If you are on Neomercazole, your bloods should be done every 2-3 weeks as you can go from hyper to hypo very quickly or may even need an increase.
On diagnosis of Graves Disease and Hyperthryoidism I was given 40mg a day then it was tapered up and down as needed.
I was so sensitive to Neomercazole that I would go from hyper to hypo in 2 weeks.

Eventually RAI was done and a thyroidectomy.
This June will be 3 years since the RAI and there is not one day I regret it.
Get your Doctor to check for Graves Disease Antibodies (TSI) and keep getting those bloods done every 2-3 weeks and not 6 weeks like most Docs advise.

Good Luck :o)
Helpful - 0
Avatar universal
Unfortunately, that's how a lot of us got on this forum...we didn't know who to believe and realized we had to figure this thing out for ourselves if we ever wanted to feel well.  That's how I got here.

Be sure to get your results and ranges from your endo.  Even if you talk on the phone, you can ask for those.  You want to start building your own personal history that's in your possession.  It's so valuable to look back at that in the future, especially if you jot down meds and symptoms before the blood draw.  Many doctors think that every patient should feel well everywhere in the ranges ("normal"), but that's far from the case.  

Perhaps your hyper is in remission???  That would be wonderful.

Ask for the TSI...that will let you know if this is a permanent condition or not and give you a better idea of what you might expect in the future.  
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Avatar universal
you give me heart to try and keep at this!! I felt the same when he said come off the tablets for a month, Endo puts me on a tablet, he takes me off it,  Endo keeps telling me levels are normal but I have never seen results as the last time I was to see her she rang me instead and said my bloods were normal!! Worn out with it all.  I do not know who to listen to or who to believe which is not good.... I think what I will do is make another appointment and ask for bloods to be checked again  for the items you mentioned and no, Graves has never been mentioned but I will ask....  
Hyper symptoms?  a few but nothing like  before I started on the thyroid tablet..
to be totally honest I was to make an appointment for May with Endo and I keep putting it off in the hope that I might get sorted a bit more before I go to her as she told me the last day on the phone that she has done all she can for me, as in my levels are NORMAL.... I just seem to be going round in circles.  Anyway thank you so much for taking the time to reply, I will keep at them all at the end of the day its my health and if I dont push who will....
Take care    
Helpful - 0
Avatar universal
You're not the only person I know who gets caught between GP and endo.  It's unfortunate they can't coordinate patient care more.  I wish your GP had taken a slightly different approach.  He should have tested FT3, FT4 and TSH.  Then, he'd have known for sure if your were overmedicated.  Perhaps your dose just needed a minor adjustment (or you need a different ATM).  Anyway, I'm glad to hear that your legs feel better...and hyper symptoms?

You may have told me above, but I can't find it at the moment...have your had TSI test for Graves'?  
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Avatar universal
Thanks for the information.  I feel caught between the Endo and the GP - Endo told me bloods normal but told me to stay on 20mg Neo.. then go to GP and he says to come off them as the joint and muscle thing could be from the tablet.. in fairness my legs are not as bad after two weeks off the tablet, I have to make appointment for Endo for next month, but in the meantime I am working with GP - very hard to know what is the right thing to do and who to listen to??
Anyway I will keep going, no choice and see how I go... thanks for your thoughts you are very kind and understanding
  
Helpful - 0
Avatar universal
Muscle and joint pain can be a symptom of hypO.  Perhaps you are overmedicated and that's why your GP discontinued your neomercazole???  Has anyone done any thyroid blood work yet?  Meds should only be discontinued after proper blood work has been done.  If you were hypo because of your meds, the danger is that you will go hyper again off them.
Helpful - 0
Avatar universal
Hi. been having a hard time recently and I just wonder have you ever come across someone having to stop taking neomercazole because of muscle & joint pain?  went to GP as I can hardly walk and feel lightheaded and he sent me for an xray on my knees and told me to stop taking thyroid tablet for a month.  I was taking it since November one tablet a day at 20mg - just wondering if you have come across this as you seem to have researched thyroid alot.  This just seems to be endless and once again I think people think it is all in my head!! all I will say is I WISH it was...
many thanks
Helpful - 0
Avatar universal
You'll find the right combination for you...it just takes a lot of time and patience when you're dealing with thyroid.  I think it's a really good idea to get in touch with your endo.  He might be able to try a different med or increase your dose a little to make you feel more comfortable.  You've made some meds changes, which might necessitate a thyroid meds adjustment.  

It might be a good idea to request labs...FT3, FT4 and TSH.  I don't see any recent labs up there, but this thread is getting long to scan, so I might have missed something.
Helpful - 0
Avatar universal
Hi- yes it did stop - but then I took the other tablet and it made me sick again and sweating and all that stuff!
The anxiety came back with full force!! really bad, I have now taken 25mg of Lustral and if these agree with me I will go up to 50mg after a week - thankfully so far so good with these, but I am going to try and get in touch with Endo this week be it in person or on the phone, the lady Doctor I saw told me to get back in touch with her, and then I get to the stage where I wonder is there something else wrong with me, but I have had EVERY test and these have come back grand, thankfully.  Its like I was getting somewhere back at work getting out walking and then I go and get tablets changed and I feel like I am back where I started... ah well we will see what today brings!!
Thank you again for you help, sometimes just typing helps
Take care    
Helpful - 0
Avatar universal
I do NOT think you're a wimp at all.  Being hyper is very uncomfortable.  Having experienced both hypo and hyper (overmedication), I'll take hypo any day.  At least you can just have a nice nap when hypo and don't feel like you're about to launch off the planet.

Did stopping the Lexapro help any with the dizziness and nausea?
Helpful - 0
Avatar universal
Hi-have had the week from hell - I was onto the lady doctor who I dealt with and worked out  it was an overactive thyroid in the first place, she thinks that I should not have stopped xanax cold turkey that I should have weaned off them!! 5 days later thats a bit late, but she rang the GP - she is so good - they agree with you that I should see my Endo this week and if I can not get an appointment I need to speak to her, this anxiety should be improving, now I think what has knocked me back is stopping those tablets straight off.  So she is going to try me on another tablet, dont know the name as I need to get the script so hopefully this will work and settle me until I get to see Endo.
Thank you AGAIN for your time and I must sound like a totally wimp but they symptoms I am having are so scary and once again you begin to think there is something more going on with you.....
take care    
Helpful - 0
Avatar universal
We're here to help...you don't have to apologize for taking my time.

It might be a really good idea to call your endo, ask to have labs run and possibly adjust your dose based on labs and symptoms.  I would think the neomercazole should have helped the anxiety by now.  Have you ever tried any of the other ATMs?  Perhaps another would be more effective for you?  
Helpful - 0
Avatar universal
Hi - thank you for the advice in your last post - I did that and it helped so much so I went to GP and he has taken me off all medications (except neomercazole) as I have been so sick and dizzy etc., so I am 4 day without anything for anxiety and I will see how I go...  what I also wonder is should I get in touch with my Endo (not due to see her til April) and see would uping the amount of neomercazole I am taking would that help?  I am now taking it for 14 weeks at 20mg
Sorry to be bothering you again but I would be grateful if you get a minute you might let me know what you think...

Take care
      
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Avatar universal
thank you for getting back to me - I will try that - take care  
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Avatar universal
Sorry, I don't.  You might try posting a new thread and asking that specific question in the headline.  Then other members can comment who do have experience.  It's hard to keep taking something tht makes you feel rotten.  Hope it resolves...
Helpful - 0
Avatar universal
Hi - I wonder do you know anything about taking lexapro for anxiety, as I have said I was on propranolo but kept dropping my BP too much-Endo gave me Xanas but the GP does not want me taking these as they are addictive and now has me on lexapro - started them 10mg once a day 3 days ago but feeling sick all day - haven't been sick just feel like I could and a bit rocky - do you have any experience of this tablet?  
many thanks in advance
Helpful - 0
Avatar universal
Hi - I had to cancel my appointment this week because of work!! If you do not mind can I just put up what is marked on my sheet to be checked at my next blood tests -
U&E
Liver
Lipid R/F (circle around the R)
TFTS
FBC
Should I have other items checked do you think?  
This blood test are not due until the week before my next appointment with Endo which I have yet to make for April?
I could ask GP to add more on if you think it might be good -
Sorry for all the questions - just learning about all this and what to ask to be checked?

Take care

Helpful - 0
Avatar universal
I've heard many people report stinging musscles from being hyper, overmedicated hypo or taking T3 meds.  I'm hypo, so don't claim to be an authority, but magnesium often seems to help.  I agree the best approach is to have minerals tested and address deficiencies rather than taking shots in the dark.

If you want to send a personal message or question to someone or make sure they see your comment, click on their name anywhere you see it on a thread.  That will bring you to their personal page where you can leave a note or a private message (PM).  Answers will appear in your "Inbox" (upper right hand cormer of page).
Helpful - 0
681545 tn?1318017380
hi again ya i had some mad feeling's in my leg's.when i asked my doc about it he said not related to graves,also had pain's in my head for a few week's he also said not related but each time i had my blood work done my  blood count was off potassume low bilrubin hi calauim low so you need to get a flood blood count done every time you get blood's done,it all come's into account it's great you get to see locum,and it's great she a women better listener's.what hop are you going to see endo in? i see a doctor Gibney in tallaght .
Helpful - 0
Avatar universal
Hi I do not know how I send this question to ann4512 and barb135 also so hopefully you will all read this and maybe be able to answer a question? Have any of you had any problems with   your legs during your Thyroid journey? mine have given me so much bother - as I sit here typing the back of my legs from behind my knees to my foot feel like stinging in my muscles (or where the muscle used to be!)  both my knees feel like this also but to touch they are not hot or warm - very weird - but when I get up and move around it stops,  at this time this is the hardest thing to cope with - I do not see Endo until April but I am thinking of going to GP's this week as the lovely lady locum who put me on the right path is covering from him this week!! - so I just thought I would ask you all if you have any thoughts on this....
Helpful - 0
Avatar universal
Hi. people are very good and if I am honest I believe you and the others in what you all say because you have been through it, where as my Endo said she never had it but has seen lots that have, not the same in my book.  I think what bugs me the most is, the impression I was given was a few tablets and I would be sorted, which is unfair - if they would tell you straight up that you have a battle on your hands then you get ready to fight, but they don't.   Well done you  being in remission and long may you stay that way -  take care
GO RAIBH MAITH AGAT  
(thank you in Irish)

        
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681545 tn?1318017380
hi i just read your post..sorry to here your only starting out with thyroid problems. it's a long road ahead but their is a light at the end of the tunnel,i no it's very hard and friend's and family don't realy under stand,cause you look well on the out side but on the inside a diffrent story i no i've been their got the t-shirt,but glad to say i'm in remmision now have been for the past 10 month;s and i'm from ireland too not many irish on the site,so wellcome the girls are great here so much help, i would have been lost without all their knowledge. hope you get sorted soon xx annmarie
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Avatar universal
For taking the time to reply and for your understanding I say "Thank you" so much.
      
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