Aa
Results advice please
Hi, my results for thyroid are TSH 5.36 (0.2 - 4.2) and Free T4 13.9 (12 - 22)
I felt best on 200mcg Levo and 10mcg T3, current dose 50mcg Levo.
Diagnosed hypothyroid 2013.
Symptoms are dry skin, cold intolerance, heavy periods, goitre, tiredness, constipation, puffy eyes, dizziness, hair loss.
TPO antibody positive 840.1 (1200 (<115)
Endo says symptoms not thyroid and has written Generalised Anxiety Disorder as an extra diagnosis.
Any advice about what to do next appreciated.
I felt best on 200mcg Levo and 10mcg T3, current dose 50mcg Levo.
Diagnosed hypothyroid 2013.
Symptoms are dry skin, cold intolerance, heavy periods, goitre, tiredness, constipation, puffy eyes, dizziness, hair loss.
TPO antibody positive 840.1 (1200 (<115)
Endo says symptoms not thyroid and has written Generalised Anxiety Disorder as an extra diagnosis.
Any advice about what to do next appreciated.
As Red_Star said, you need to get your B12 into the upper end of the range, your Vitamin D should be at least 50ng/mL (I am not sure if your result in in same measurement units), and ferritin needs to be at least 100. You can find all of that in the paper I linked above.
Of course you need to get your thyroid med dosage increased as needed to relieve your many hypo symptoms. If there is any possibility with your primary doctor, then you could provide the doctor with a copy of the paper linked above and ask him to read and consider clinical treatment. If no other option I do know about a few UK doctors that have been recommended by thyroid patients. If interested, one is in Surrey and one is 60k SW of London. I expect that they are "private".
Of course you need to get your thyroid med dosage increased as needed to relieve your many hypo symptoms. If there is any possibility with your primary doctor, then you could provide the doctor with a copy of the paper linked above and ask him to read and consider clinical treatment. If no other option I do know about a few UK doctors that have been recommended by thyroid patients. If interested, one is in Surrey and one is 60k SW of London. I expect that they are "private".
You need to get B12 levels up (reference ranges are far too low in most countries)
. When I increased my B12 my folate increased as well.
. When I increased my B12 my folate increased as well.
Trying to fill in the blanks, I assume you were diagnosed as hypothyroid due to Hashimoto's Thyroiditis. You were previously on a dosage of 200 mcg of T4. With that dosage your TSH became suppressed below range and the doctor became concerned (unnecessarily) that you had become hyper and reduced your dosage to 50 mcg. So now your TSH has gone back up and your Free T4 is near the bottom of the range, which is inadequate for most people, your Hashi's antibodies level is 10 times its upper range limit, and Free T3 was not even tested. You also are suffering with symptoms that are typical of hypothyroidism.
Yet, in spite of all that your Endo decided that your problem was not thyroid, but anxiety. That is just unbelievable. So the first thing you need to do is abandon that doctor and find a good thyroid doctor. By that I mean one that will treat clinically by testing and adjusting both Free T4 and Free T3 as needed to relieve symptoms, without being influenced by resultant TSH levels. Many of us have found that we needed Free T4 at least at mid-range, and Free T3 in the upper third of its range, and adjusted from there as needed to relieve symptoms. Symptom relief should be all important, not just test results, and especially not TSH when taking thyroid med. I say that about TSH because most people taking thyroid med adequate to relieve symptoms find that their TSH becomes suppressed below range. That does not mean hyperthyroidism, unless there are hyper symptoms due to excessive levels of Free T4 and Free T3.
You can confirm what I say here by reading the info in the following link. I highly recommend reading at least the first two pages, and more, if you want to get into the discussion and scientific evidence for all that is recommended. Note especially Rec. 13 on page 13 regarding suppressed TSH.
http://www.thyroiduk.org/tuk/TUK_PDFs/The%20Diagnosis%20and%20Treatment%20of%20Hypothyroidism%20%20August%202017%20%20Update.pdf
In addition, hypothyroids patients are frequently deficient in Vitamin D, B12 and ferritin, so you should get those tested and then supplement as needed to optimize. D should be at least 50 ng/mL. B12 in the upper end of its range and ferritin should be at least 100.
Do you think you will be able to find a doctor that will treat clinically as described? If not, if you live in the U.S. tell us your location and we might be able to suggest a doctor that has been recommended by other thyroid patients.
Yet, in spite of all that your Endo decided that your problem was not thyroid, but anxiety. That is just unbelievable. So the first thing you need to do is abandon that doctor and find a good thyroid doctor. By that I mean one that will treat clinically by testing and adjusting both Free T4 and Free T3 as needed to relieve symptoms, without being influenced by resultant TSH levels. Many of us have found that we needed Free T4 at least at mid-range, and Free T3 in the upper third of its range, and adjusted from there as needed to relieve symptoms. Symptom relief should be all important, not just test results, and especially not TSH when taking thyroid med. I say that about TSH because most people taking thyroid med adequate to relieve symptoms find that their TSH becomes suppressed below range. That does not mean hyperthyroidism, unless there are hyper symptoms due to excessive levels of Free T4 and Free T3.
You can confirm what I say here by reading the info in the following link. I highly recommend reading at least the first two pages, and more, if you want to get into the discussion and scientific evidence for all that is recommended. Note especially Rec. 13 on page 13 regarding suppressed TSH.
http://www.thyroiduk.org/tuk/TUK_PDFs/The%20Diagnosis%20and%20Treatment%20of%20Hypothyroidism%20%20August%202017%20%20Update.pdf
In addition, hypothyroids patients are frequently deficient in Vitamin D, B12 and ferritin, so you should get those tested and then supplement as needed to optimize. D should be at least 50 ng/mL. B12 in the upper end of its range and ferritin should be at least 100.
Do you think you will be able to find a doctor that will treat clinically as described? If not, if you live in the U.S. tell us your location and we might be able to suggest a doctor that has been recommended by other thyroid patients.
1 Comments
Thanks I live in UK South West. I have vitamin/mineral results
Ferritin 41 (30 - 400) haematologist wants it over 50 or I am sent back to him for iron infusion
Folate 2.0 (2.5 - 19.5)
Vitamin B12 221 (190 - 900)
Vitamin D 38.8 (25 - 50 deficient)
Taking 800iu D3 and 1 iron tablet only
Ferritin 41 (30 - 400) haematologist wants it over 50 or I am sent back to him for iron infusion
Folate 2.0 (2.5 - 19.5)
Vitamin B12 221 (190 - 900)
Vitamin D 38.8 (25 - 50 deficient)
Taking 800iu D3 and 1 iron tablet only
What thyroid med dosage were you taking at the time of the tests?
1 Comments
50mcg Levo
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