I am a 19 year old female (5'8, 140 pounds so I'm a healthy weight.)
I have been having persistent, worsening, strange symptoms over the course of my life that was never diagnosed, and that I think may be a thyroid problem, but I'm hoping some of you have some insight to other ideas.
My dad and his mother are both hypothyroid, and my mom's side of the family has a history of crohns, collagenous colitis, and most likely more. (They were all very poor and many of them died young.) My mom had a lump in her breast in her 20's, but my dad has never had cancer.
As a kid, I was always very anxious. At night, I would always be too hot and too cold at the same time. I've always had a body temperature of around 97.1 and a low blood pressure. I've always been extremely tired for no reason, which often caused me to fall asleep in class. No matter how much sleep I'd get, I'd just be exhausted. My mom was always taking me to the doctor for being so tired, but they'd pretty much test me for mono, say "nope not mono just sleep more" and send me home. I've never gained or lost unexplained weight.
I developed allergic reactions to every antibiotic I've tried besides one. My mom claims it was because I had to use them as a baby for ear infections caused by smokers (?). I had strep throat once a month for an entire year one year which prompted the removal of my tonsils and adenoid. However, even after having my adenoid taken out, I had persistent, almost constant sinus infections which were dismissed as "non-allergic rhinitis." I also saw a ton of floaters all the time until I started middle school, but I've always had 20/20 vision.
As a kid I started wheezing a lot for no reason and had some sort of testing done. They determined I had asthma, which didn't really make sense considering I never had asthma attacks and inhalers didn't do anything for me. I started getting a lot of sharp chest pains as a kid upon breathing that would last for minutes at a time, but my mom told me it was spasms of my diaphragm.
I almost had surgery in 4th grade because of osteochronditis dissicans. I DID have surgery on my shoulder later on because the joint was so loosened by 8 years of swimming I could practically pull it out (but I still can, so I dunno.) A lot of my joints are loose. For as long as I can remember, every time I stand up I am temporarily blind. No seeing stars, just black. I got a burning pain in my upper back that was diagnosed as a pinched nerve around the age of 13. I also have an occipital lymph node that is so big it feels like a knot, and it's been there for years and years.
When I was 14, I went to a very intense swim camp and afterwards, was very very thirsty and sick for a week. After around a week of drinking tons of water (and eating plenty, trust me) I woke up one morning feeling sort of nauseous and cold. I walked into the bathroom, turned on the shower turned around and the next thing I knew I was face first on the ceramic tiles. I could feel my nose hitting them. My dad turned me over, and I was sweating and very cold and clammy. I felt like I was dying. We got to the ER, and my blood pressure was 70/20 and pretty much stayed around that range for a good while. They gave me fluids and had me lie down for a while. When I was lying down, my blood pressure was normal. As soon as I'd sit or stand, I'd get very sick. They told me I was dehydrated, but I know I wasn't. I still don't know why that happened.
In highschool, I started getting a lot of strange symptoms like chronic depersonalization/detachment, seeing flashes of light every day for most of the day, panic attacks, everything looking like it's very far away, not recognizing myself in the mirror, very strange memory loss, especially hard time finding the correct word, very severe anxiety, numbness in my hands, speech that would become slurred upon anxiety, constant hunger and craving for sweets etc etc. I took prozac, and it didn't help. Cymbalta didn't help.
In college I felt fine for a while, but started losing a ton of hair for a while (it grew back) and also started getting this numbness in my back in my left shoulder blade. It would also sort of ache sometimes. I figured it was from my shoulder since it's the same shoulder I had surgery on.
This past summer I started developing symptoms that perfectly match simple partial seizures in temporal lobe epilepsy. Very sudden inability to speak, very strange feeling that's kind of like deja vu, very strong deja vu, feeling like everything is very strange and far away, not understanding speech so well, having a glassy stare, crying without really feeling sad in the first place, difficulty using my hands/sensing space, etc. I had these constantly, saw neurologists, had tons of tests, and the only thing they told me was low B12.
I started taking Adderall from a friend out of desperation to do well this semester in college (or, you know, actually be able to learn) which magically made everything go away. EVERYTHING that was ever wrong with me was suddenly just so right. I was smart, energetic, motivated, healthy, etc. And then for some reason I just started feeling awful around 2 weeks ago. I had gotten a prescription for Zolpidem which I'd take to sleep, but the next day I would just feel TERRIBLE. One night, my palms turned really red, developed some kind of dark red rash with swollen, painful knots, huge veins, and swollen feet. I was dripping with sweat and my heart was racing and felt like it wasn't beating right. I took some claritin and ibuprofen and tried to sleep. The next morning my hands and feet were still swollen. At lunch my resting heart rate was 138. Ever since then, I've just been so sick. My eyes feel hot, like I have a fever, and the tips of my fingers swell and turn red. My gums are infected, I have a sinus infection, my throat's a little sore, I had an infected nail, and I have these weird sores on my hand (one on my wrist, one on my knuckle.) My teeth ache all the time (maybe from teeth grinding) and I never feel like leaving my room anymore. My arm has this weird muscle ache, and I feel too weak to lift heavy things or go up more than one flight of stairs. My back has been hurting a lot.
I've developed this awful pain (kind of like dull but stabbing?) in my back where the numbness used to be. I can barely turn my head (left is harder than right) because it is so stiff. This could be due to my backpack. I've found that taking antihistamines make me feel a little less like I'm dying the next day. I just finished finals. I want to try to quit taking adderall but I have to drive for 3 hours tomorrow.
Please help, I'm afraid I am dying. I have only been smoking for half a year. This doesn't make sense. I just want to be a scientist