Aa
Wilsons Temperature Syndrome
has anyone here been diagnosed with this/in treatment for it? seems to have some connection to hypothyroidism as well.
This is a very old thread, and I don't think any of the posters, including GravesLady, have participated in years, so you are unlikely to get a response.
The medical profession does not want to admit how much they don't know about hormonal issues. They're making plenty of money prescribing an antiquated drug like Synthroid to change anything. The symptoms for Wilson's are the same 'nonspecific' symptoms that you have with all hypothroid issues. Wilsons describes people who have the same symptoms, but their thyroid blood tests are all within 'normal' range. When the patient reports feeling miserable, the doctor then tells them that it's all in their head, because the blood tests are all normal. Blood tests cannot diagnose the entire hormonal system. T3 therapy with Wilson's is done in such a way as to not produce wide fluctuations, when taken as directed. In short, all the objections raised by the ATA are bogus.
I strongly disagree. Just because there isn't scientific 'proof' that something works doesn't mean that it doesn't. Being attacked by medical professional organizations is meaningless as well - they're protecting their own interests. WTS is real and thousands of people have benefited from it after conventional medical treatments didn't do anything but get the lab numbers right. You can't always use lab numbers as a reliable measurement.
There is so much info out there - its hard to know whats legit and what isnt'. I did some further research and came across the American Thyroid ***. position on it which is what you posted above Graveslady. Plus it was dodgy that it wasn't covered by insurance and the consulting and treatment fees were very high!
Being treated with added t3 supplement per levels is different than Wilson's syndrome treatment, which ignores all thyroid levels and conventional treatments. This is dangerous and no legit doctor will prescribe this type of treatment! Wilson's syndrome treats by temperature and symptoms alone.
As I mentioned, his treatment has killed patients.
If you can't believe AACE,............well!
As I mentioned, his treatment has killed patients.
If you can't believe AACE,............well!
Yes I have heard of it. a fellow co-worker has it and was treated with synthroid an some extra t3. /she never did feel well and is now off synt hroid and is getting some kind of T3 only therapy, and she feel much better.
Do not know mauch about it more than that.
Do not know mauch about it more than that.
He has been sued and thrown out of business! His doctor license has been taken away.
He, his diagnose and his treatment are phony.
In 1999, the American Thyroid Association concluded that there was no scientific evidence supporting the existence of "Wilson's Syndrome." In a strongly worded statement, the association concluded:
The proposed basis for this syndrome is inconsistent with well-known and widely-accepted facts about thyroid hormone production, metabolism, and action.
The diagnostic criteria for "Wilson's syndrome"-- nonspecific symptoms and body temperature measurement -- are imprecise.
There is no scientific evidence that T3 therapy is better than a placebo would be for management of nonspecific symptoms, such as those that have been described as part of "Wilson's syndrome," in individuals with and normal thyroid hormone concentrations,
T3 therapy results in wide fluctuations in T3 concentrations in blood and body tissues. This produces symptoms and cardiovascular complications in some patients, and is potentially dangerous.
Note: Although "Wilson's Syndrome" -- as defined by E. Denis Wilson, M.D. -- is a bogus diagnosis, there is a Wilson's disease, a rare condition caused by a defect in the body's ability to metabolize copper.
He, his diagnose and his treatment are phony.
In 1999, the American Thyroid Association concluded that there was no scientific evidence supporting the existence of "Wilson's Syndrome." In a strongly worded statement, the association concluded:
The proposed basis for this syndrome is inconsistent with well-known and widely-accepted facts about thyroid hormone production, metabolism, and action.
The diagnostic criteria for "Wilson's syndrome"-- nonspecific symptoms and body temperature measurement -- are imprecise.
There is no scientific evidence that T3 therapy is better than a placebo would be for management of nonspecific symptoms, such as those that have been described as part of "Wilson's syndrome," in individuals with and normal thyroid hormone concentrations,
T3 therapy results in wide fluctuations in T3 concentrations in blood and body tissues. This produces symptoms and cardiovascular complications in some patients, and is potentially dangerous.
Note: Although "Wilson's Syndrome" -- as defined by E. Denis Wilson, M.D. -- is a bogus diagnosis, there is a Wilson's disease, a rare condition caused by a defect in the body's ability to metabolize copper.
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